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Posted: Wed Jan 14, 2004 6:00 am
by fightingms
Your welcome about the fatigue meds. I hope you find one that works for you.
As you can see from Niko's post what worked for me didn't for her......what didn't work for me did for her!!!
Good Luck to you............Kim
What 1 Symptom...?
Posted: Wed Jan 14, 2004 2:13 pm
by Guest
I've got brainfog, and fatigue which is helped by Amantadine. But if I could walk, not wall walk, not lurch, no cane, no falls - I would be so happy!
Posted: Fri Jan 23, 2004 7:37 am
by BrendaH
For me, it has to be the urinary trouble - frequency and URGENCY! Can't go anywhere unless I know where the toilets are, if there are any. Not always sure here in France...
Of course, for the past 2 weeks or so, I've had this funny feeling in my right arm and leg which lasts for a few seconds at a time. Like I can't control them, and I have a hard time walking, writing or typing for those few seconds. Starting to interphere with my work, so I may have to see the neuro. Sigh!
FATIGUE
Posted: Fri Jan 23, 2004 12:26 pm
by NAUAuntie
Even though my hands hurt me all the time, I can deal with that. I can't stand the fatigue!!!
My second would be the pain in my hands.
My third (and this may be first come next summer!) is the inability to tolerate heat! I live in Arizona, for crying out loud! I cannot stand to be hot, or usually even warm.
Growl,
Hugs
Auntie Jane
Posted: Fri Jan 23, 2004 1:31 pm
by LarryLDN
When I go out in COLD weather, my neck and head can't handle it, they spasm and tighten and I'm in pain until I either warm up a bit or can get them to relax.
I had this last winter for the first time and was hoping it wouldn't happen any more... but this winter, same thing.
Posted: Mon Feb 02, 2004 9:13 am
by dawny
I would have to say fatigue and this new pain in my thigh it just started, a pain in my upper right thigh it shots up my thigh.
Posted: Fri Feb 06, 2004 3:21 am
by Aikika
For me it's the loss of function in my left hand. How can a poor boy play rock'n roll guitar without the use of the fret board. Now if this disease takes my right I won'tbe able to write my stories, then all creativity will be lost. Is there a worse fate????
Posted: Fri Feb 06, 2004 3:32 am
by crispy
Hi Aikika.
I sympathise with your problems - I can't come up with a solution for your guitar playing, but the creative writing should still be achievable, even if you have to record it to tape for someone else to key in. Let's all hope that the brain keeps active
All the best,
Chris P
PS. What's happened to the spell-check guys
