Posting for Suecat
Posted: Sat Nov 11, 2006 11:24 am
I'm posting this message for another member who's unable to post and going through a rough time. Arron maybe you have some suggestions for her.
"Hi, my name is Sue (registered name Suecat) I have registered as a member to the "thisisms" site but unfortunately with my computer am always unable to post. I get the msg that due either my firewall is not letting me get on or something due to my comp. using a proxy server. (something like that - I am not very computer savy). I just got my computer back from servicing and it has not been the same since. So I am have searched for a member who had an email address because even trying to send an email using the preformatted email post on the site would not work. If I had a site email address I would use that. Anyways sorry, I hope you can help me. I wanted to introduce myself. I was just officially diagnosed a little over 3 weeks ago. Quick run down first sign was otpic neuritis early Oct. Sent to local Emerg by the Opthamologist I went to see when my left eye vision was compromised. She said I was going to see an "opitic neuritis" specialist. Turned out it was a MS specialist - which I saw on her card. This was a Friday, (6 hours in Emerg waiting) specialist set up a MRI for Wed. (fast). Had that done, by the following Sunday while still waiting on MRI results weakness in legs, so in a panic I go back to Emerg. Where in the hallway - after 10 hours of waiting- and being kicked out of the room for another patient a neurologist (not the same specialist -) told me I had MS. Neurologist said she would contact the MS clinic and set up an apt. This was done I am now under the care of the MS specialist who saw me in the emerg with my eye orig. I am currently taking oral prednisone - started at 1000mg for 3 days and am now tapering off. Have had terrible side effects which actually landed me in the hospital emerg for 2 days. Just back yesterday. Constipation so bad it was impacted----awful removal procedure. I am home now but this intro to MS has put me in a bit of a despair. After the steroids the plan is to put me on Betaseron. I am walking with a walker at home. My legs feel much stronger. I stared my steroids NOv 1. I am hoping my legs remitt completely of course. I guess time will tell I cant believe all this has happened since 13oct. The day before my legs went weak I was raking leaves in my yard. My eye had already cleared and I was just waiting for my results. MS clinic appt was on the 30th. The specialist was surprised to see me with my weak legs. She was not aware that I had been in Emerg and told by the neuroligist on call. And although she discouraged steroids for the eye she thought we should try for the legs. I am a teacher and am not able to work with these legs as they are so am now off till January. Its all been a bit of a shock. I am single, so no real help. I am trying to keep calm but at times very difficult. Especially with all that has happened in such a short time. At this moment I am okay. Continuing with the Prednisone, drinkinlg lots of water so I dont get clogged again and am waiting and hoping for strenght back in legs so I can concentrate on learning and maximizing everything there is out there to help with this new reality of mine. I have been reading you site and find it interesting and informative. I wish I could participate fully. ( a new computer will definately have to be considered). I am nervous about everything. My Ms specialist seems nice enough.....and so is her nurse clinician. I am in Winnipeg, cAnada by the way. Sorry this is a bit jumbled up I know. I just today came across Allan Osmond website and he is extolling the virtues of SF1019 as better than another product Aimspro. Yet I see nothing else about this.........its all so confusing. I have followed your new drug forum. Its all so overwhelming for me. Anyways thanks for letting me write this. I hope its not too long for you or confusing. I wish all of you the best. Do I understand well that there is no fixed time frame for relapses to remitt. Steroids hasten but no time frames can be given with any accuracy. I just wonder if starting on steroids on NOv 1st that I am as good as I will get or is it still too hard to say and I may or may not get better yet only time will tell. Also what do you guys who are so more knowledgeable than me at this point feel about what Mr Osmond is saying. I need to get some context here. I sure would like to hear there is hope. I have read some awful stuff. I have been told I have RRMS. I am 48 years old female, small frame - 119 lbs which they say didnt help with using the steroids. Anyways I am registered as Suecat, hopefully I can get this computer fixed up even better or a new one. I hope someone can ctc me. It would be nice to just know I am heard. tks again all the best toeveryone. Sue
PS if someone knows what I could do with this silly computer to get it to allowe me to go to you site as a member plse forward. I never worried too much about this comp. being so lousy because I had one at work I always used but now my substitute has it. I miss work...funny to say. I always looked forward to Friday....funny how things change. hope to hear from you. thanks."
Sue, unfortunately we have all gone through this and it does eventually get better. I know that sometimes it helps to just get the feelings out in words. We are all here for you and I believe that help is on the way. A lot of positive research is being done. I hope that you start to feel better soon.
"Hi, my name is Sue (registered name Suecat) I have registered as a member to the "thisisms" site but unfortunately with my computer am always unable to post. I get the msg that due either my firewall is not letting me get on or something due to my comp. using a proxy server. (something like that - I am not very computer savy). I just got my computer back from servicing and it has not been the same since. So I am have searched for a member who had an email address because even trying to send an email using the preformatted email post on the site would not work. If I had a site email address I would use that. Anyways sorry, I hope you can help me. I wanted to introduce myself. I was just officially diagnosed a little over 3 weeks ago. Quick run down first sign was otpic neuritis early Oct. Sent to local Emerg by the Opthamologist I went to see when my left eye vision was compromised. She said I was going to see an "opitic neuritis" specialist. Turned out it was a MS specialist - which I saw on her card. This was a Friday, (6 hours in Emerg waiting) specialist set up a MRI for Wed. (fast). Had that done, by the following Sunday while still waiting on MRI results weakness in legs, so in a panic I go back to Emerg. Where in the hallway - after 10 hours of waiting- and being kicked out of the room for another patient a neurologist (not the same specialist -) told me I had MS. Neurologist said she would contact the MS clinic and set up an apt. This was done I am now under the care of the MS specialist who saw me in the emerg with my eye orig. I am currently taking oral prednisone - started at 1000mg for 3 days and am now tapering off. Have had terrible side effects which actually landed me in the hospital emerg for 2 days. Just back yesterday. Constipation so bad it was impacted----awful removal procedure. I am home now but this intro to MS has put me in a bit of a despair. After the steroids the plan is to put me on Betaseron. I am walking with a walker at home. My legs feel much stronger. I stared my steroids NOv 1. I am hoping my legs remitt completely of course. I guess time will tell I cant believe all this has happened since 13oct. The day before my legs went weak I was raking leaves in my yard. My eye had already cleared and I was just waiting for my results. MS clinic appt was on the 30th. The specialist was surprised to see me with my weak legs. She was not aware that I had been in Emerg and told by the neuroligist on call. And although she discouraged steroids for the eye she thought we should try for the legs. I am a teacher and am not able to work with these legs as they are so am now off till January. Its all been a bit of a shock. I am single, so no real help. I am trying to keep calm but at times very difficult. Especially with all that has happened in such a short time. At this moment I am okay. Continuing with the Prednisone, drinkinlg lots of water so I dont get clogged again and am waiting and hoping for strenght back in legs so I can concentrate on learning and maximizing everything there is out there to help with this new reality of mine. I have been reading you site and find it interesting and informative. I wish I could participate fully. ( a new computer will definately have to be considered). I am nervous about everything. My Ms specialist seems nice enough.....and so is her nurse clinician. I am in Winnipeg, cAnada by the way. Sorry this is a bit jumbled up I know. I just today came across Allan Osmond website and he is extolling the virtues of SF1019 as better than another product Aimspro. Yet I see nothing else about this.........its all so confusing. I have followed your new drug forum. Its all so overwhelming for me. Anyways thanks for letting me write this. I hope its not too long for you or confusing. I wish all of you the best. Do I understand well that there is no fixed time frame for relapses to remitt. Steroids hasten but no time frames can be given with any accuracy. I just wonder if starting on steroids on NOv 1st that I am as good as I will get or is it still too hard to say and I may or may not get better yet only time will tell. Also what do you guys who are so more knowledgeable than me at this point feel about what Mr Osmond is saying. I need to get some context here. I sure would like to hear there is hope. I have read some awful stuff. I have been told I have RRMS. I am 48 years old female, small frame - 119 lbs which they say didnt help with using the steroids. Anyways I am registered as Suecat, hopefully I can get this computer fixed up even better or a new one. I hope someone can ctc me. It would be nice to just know I am heard. tks again all the best toeveryone. Sue
PS if someone knows what I could do with this silly computer to get it to allowe me to go to you site as a member plse forward. I never worried too much about this comp. being so lousy because I had one at work I always used but now my substitute has it. I miss work...funny to say. I always looked forward to Friday....funny how things change. hope to hear from you. thanks."
Sue, unfortunately we have all gone through this and it does eventually get better. I know that sometimes it helps to just get the feelings out in words. We are all here for you and I believe that help is on the way. A lot of positive research is being done. I hope that you start to feel better soon.