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Burning

Posted: Wed Mar 14, 2007 1:44 am
by jana
Hello, 14 days ago I had terrible reaction on copaxone. Vomiting, problems with breath and so on...

From the time I have during a day problems with terrible burning (in my head especially, than my shoulder and chest) and with feeling of lack of air in my lungs, I am afrai of swooning but it never happens). Does anybody know this? Is it from MS, or from Copaxone? My doctor doesn´t know and I´am very nervous from it. Pleas write.

Posted: Wed Mar 14, 2007 4:06 am
by Niko
Jana,

Hi! I hope this message finds that you are feeling better.
When you started on Copaxone were you given any information on nursing/support that you could contact?

In the US you could call "Shared Solutions". I'm don't know if there's something similar to where you are in Europe.

Take care,

Niko

Posted: Wed Mar 14, 2007 5:07 am
by jana
I didn´t here that there is a center or a telephone line to contact when having problems with copaxone, I know something is for Betaferon but not from copaxone. That´s why I´m trying to find help here. But thanks for your reaction!

Posted: Wed Mar 14, 2007 6:16 am
by Manchester
Hi Jana,

The shared solutions website says
Shared Solutions® representatives can be reached by calling 1-800-887-8100, Monday through Friday, from 8:00 a.m. to 8:00 p.m. (CT). MS-certified nurses are available after these hours for more urgent needs.

Best thing would be to call the number and ask to speak with a nurse.

Good luck
Manchester