Length of time to DX
Posted: Wed Sep 22, 2004 3:42 pm
I have been reading all the posts and there is some wonderful information here. People have really done a lot of research and I have been able to expand mine with help from you guys, so thanks.
I started having steady symptoms back in Jan of 2003. Been to the round of Dr's and had tests. The motor evoked potentials came back abnormal and that's it. Yet I lost my vision for three days (blurry, could see shapes only, couldn't read etc) dizzy, cramps, you name it. Things quiet down for a month or two and then something else comes up.
I am seeing an MS specialist now and have an MRI scheduled for next month. He said he was surprised that the last one didn't show anything because of my symptoms. That will be six months ago.
I have a few questions I hope you guys can answer
How long did it take for you to get dx and how many MRI's?
My left side seems to be effected more and my left leg often feels tired and painful. If it is MS, is it possible it could stay this way or does it get worse by virtue of the disease. I often find myself worried about the leg just not working at all but it's been a year and half and .....
Did anyone worry about ALS while waiting for a dx? I have found info on it, but I can't seem to find anywhere a real time line for problems. The articles tell you things gradually happen, but no reference other than 3-5 yrs life expectancy.
Have you ever started to doubt anything is wrong, only for something else to occur? Did you find you seemed to be more sensitive to the little aches and pains and again thought maybe it was normal?
Did you tell people other than familywhat you were going through?
Sorry for all the ??'s and I will probably have more, I just want to know (think) that I am not alone in all of this.
thanks
S
I started having steady symptoms back in Jan of 2003. Been to the round of Dr's and had tests. The motor evoked potentials came back abnormal and that's it. Yet I lost my vision for three days (blurry, could see shapes only, couldn't read etc) dizzy, cramps, you name it. Things quiet down for a month or two and then something else comes up.
I am seeing an MS specialist now and have an MRI scheduled for next month. He said he was surprised that the last one didn't show anything because of my symptoms. That will be six months ago.
I have a few questions I hope you guys can answer
How long did it take for you to get dx and how many MRI's?
My left side seems to be effected more and my left leg often feels tired and painful. If it is MS, is it possible it could stay this way or does it get worse by virtue of the disease. I often find myself worried about the leg just not working at all but it's been a year and half and .....
Did anyone worry about ALS while waiting for a dx? I have found info on it, but I can't seem to find anywhere a real time line for problems. The articles tell you things gradually happen, but no reference other than 3-5 yrs life expectancy.
Have you ever started to doubt anything is wrong, only for something else to occur? Did you find you seemed to be more sensitive to the little aches and pains and again thought maybe it was normal?
Did you tell people other than familywhat you were going through?
Sorry for all the ??'s and I will probably have more, I just want to know (think) that I am not alone in all of this.
thanks
S