Copaxone for ppms
Posted: Tue Jul 24, 2007 7:28 am
Hi All:
I haven't posted for a while but I was interested to see if anyones neuro is advising them to use copaxone for ppms as mine is? I have a very high degree of confidence in this group. They are researchers and only treat MS patients. It seems they believe that copaxone will provide some level of "neuro protection." This has put me in a quandary because I know the ppms study was shut down because it became obvious it wasn't going to work. I would be happy to try it but I really can't spend the $7000 it would cost me without better evidence that it would alter the course of this disease. I know sometimes they want to try "something" because it's hard to watch people suffer but I have an obligation to my family not to "experiment" with money which might be better spent on other needs.
So... if anyone has any experience with ppms and copaxone I'd sure like to hear about it.
Thanks also to all of you who post often. I read this forum daily and it really helps to know I'm not in this alone.
Thanks
Mick
I haven't posted for a while but I was interested to see if anyones neuro is advising them to use copaxone for ppms as mine is? I have a very high degree of confidence in this group. They are researchers and only treat MS patients. It seems they believe that copaxone will provide some level of "neuro protection." This has put me in a quandary because I know the ppms study was shut down because it became obvious it wasn't going to work. I would be happy to try it but I really can't spend the $7000 it would cost me without better evidence that it would alter the course of this disease. I know sometimes they want to try "something" because it's hard to watch people suffer but I have an obligation to my family not to "experiment" with money which might be better spent on other needs.
So... if anyone has any experience with ppms and copaxone I'd sure like to hear about it.
Thanks also to all of you who post often. I read this forum daily and it really helps to know I'm not in this alone.
Thanks
Mick