This Is MS Multiple Sclerosis Knowledge & Support Community

Art posted this in the "Pulling it all Together" thread.

Vince Macaluso in Flushing NY is a neurologist with MS. He's in midst of setting up a private practice so doesn't have contact info at the moment, but I can forward something to him if you want. Send to art-at-bostoncure-dot-org

Sarah

Sarah,

It would be very interesting to see if Vince follows the standard course for MS treatment on himself or if he looks to other medications such as LDN, etc.

Harry

Harry,
Taken from the same thread!

Says Art: "Vince is taking Avonex, and speaks at numerous Biogen events. (!!)

Since all the currently approved meds are about 30% effective, any benefit of one of the other is measured in a few percent which is unlikely to have a noticable effect in an individual.

Pick the one that fits your lifestyle the best, monitor your progress, and if you don't respond - change to another."

Whether he thinks in the broader spectrum re: anyone else, who knows. Hopefully he might.

I'm just glad I am married to a medical microbiologist, who took matters into his own hands.

Sarah

I can tell you, he's not the only neurologist with ms. I've heard of at least two in my state. One of these is still not public about it.

There is a video interview with Macaluso on the web somewhere. Here is an interview transcript.
http://www.healthology.com/webcast_tran ... ealthology

I wish mine had it, then the SOB would know what it's like.