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Any Advice, Have Appointment Monday!

Posted: Fri Sep 07, 2007 4:57 pm
by savagek
Hello,

I have been diagnosed with MS 6/12/07, but also have a Lyme Literate doctor to rule out Lyme Disease. I will get my results from iGeneX on 9/10/07.

Please let me know of any information, advice, or questions I should know about before going to this appointment.

Thanks,

Rob

new dx

Posted: Sat Sep 08, 2007 3:11 pm
by mickb
Hi Rob:

I have ppms so I'm probab;y not the best person to reply, but I guess I would find out what treatment he recommends. You don't mention if you've had MRI's or LP's (lumbar puncture / spinal tap). I would try to get on one of the approved therapies as soon as possible. I tried one of the interferons and didn't tolerate it well. If I had good insurance I would probably be on Copaxone (even though it isn't approved for ppms). Start studying this disease and treatments so you'll know something about it when he starts to discuss it.

hope this helps a little

Mick