Posted: Sun Sep 30, 2007 12:03 pm
Hi JL & NHE
Thanks so much for your replies & concern, as always, everyone's generosity amazes me.
I have been taking 300mg magnesium twice a day for about 5 weeks now, as mentioned previously, but have seen no noticable improvement as yet, but will persevere!
The cramps are definitley from the Avonex - I never had anything like this before I started it, and I only get them for 24 hours after the injection ( starting from about the 3rd - 4th hour post injection). I do take a combo drug - paracetamol/ibuprofen - and upped the dosage as per your suggestion (NHE - thanks), and this has helped with the muscle/joint pain, but the cramps....they still come visit! I won't consider stopping the Avonex for a while yet - it has only been 6 months (I am sure the side effects will diminish over time), and I am just trying to find a way to make it a little easier. Maybe some kind of muscle relaxant with the combo drug? I have no experience of those kinds of drugs but will check them out...
NHE - I hear what you are saying about docs - I know that they are there to help us - that is their job, but sometimes they have a way of making you feel as if you are wasting their time with your "complaints" when there are really sick people out there! I also know that it is important to stick to your guns - I would be dead from cancer by now if I hadn't self-referred to a urologist as my GP did a standard urine test for infections and told me there was nothing wrong with me, meanwhile I had a two cm tumour in my bladder that had already invaded the muscle layer - I just knew there was something wrong....It just feels like I am always complaining so I slink around the Neuro's office like a kicked puppy - probably the wrong attitude - I just ask to be kicked! I don't have a choice with Neuro's where I live unfortunately - I need to figure out how to get a macho-man who goes bungi-jumping and plays extreme sports for fun to be sympathetic towards me - I need to manage upwards, so to speak - if I don't tell him anything and just answer his questions, he asks me why I am not arguing with him and wants to prescribe anti-depressants (which he did!), if I leap in there, he tells me he is the expert and not to question him!
Anyway, thanks for listening to me moan (again) - it helps to vent!
Take care
Thanks so much for your replies & concern, as always, everyone's generosity amazes me.
I have been taking 300mg magnesium twice a day for about 5 weeks now, as mentioned previously, but have seen no noticable improvement as yet, but will persevere!
The cramps are definitley from the Avonex - I never had anything like this before I started it, and I only get them for 24 hours after the injection ( starting from about the 3rd - 4th hour post injection). I do take a combo drug - paracetamol/ibuprofen - and upped the dosage as per your suggestion (NHE - thanks), and this has helped with the muscle/joint pain, but the cramps....they still come visit! I won't consider stopping the Avonex for a while yet - it has only been 6 months (I am sure the side effects will diminish over time), and I am just trying to find a way to make it a little easier. Maybe some kind of muscle relaxant with the combo drug? I have no experience of those kinds of drugs but will check them out...
NHE - I hear what you are saying about docs - I know that they are there to help us - that is their job, but sometimes they have a way of making you feel as if you are wasting their time with your "complaints" when there are really sick people out there! I also know that it is important to stick to your guns - I would be dead from cancer by now if I hadn't self-referred to a urologist as my GP did a standard urine test for infections and told me there was nothing wrong with me, meanwhile I had a two cm tumour in my bladder that had already invaded the muscle layer - I just knew there was something wrong....It just feels like I am always complaining so I slink around the Neuro's office like a kicked puppy - probably the wrong attitude - I just ask to be kicked! I don't have a choice with Neuro's where I live unfortunately - I need to figure out how to get a macho-man who goes bungi-jumping and plays extreme sports for fun to be sympathetic towards me - I need to manage upwards, so to speak - if I don't tell him anything and just answer his questions, he asks me why I am not arguing with him and wants to prescribe anti-depressants (which he did!), if I leap in there, he tells me he is the expert and not to question him!
Anyway, thanks for listening to me moan (again) - it helps to vent!
Take care