CIS and spinal tap and fatigue
Posted: Tue Jan 08, 2008 6:58 am
Early last year I had 2 events about 1 month apart, each followed by new MS type symptoms. MRIs following each event showed a new lesion in the brain. Almost a year out, the MRIs show no new activity and I haven't experienced new symptoms. A stong course of steroids knocked out most symptoms about half a year ago, though I've had lingering fatigue, which has at times been significant.
2 questions:
1)CIS and testing
It seems that I fit into the group called Clinical Isolated Syndrome, having had 2 demylinating events - not enough activity for a definitive diagnosis. My neurologist seems to have a very wait and see opinion and appears very skeptical that my case will develop further. The majority of the reason seems to be on my age, early 40's. I've asked for further testing that may give some more indication, particularly since I have MS in the family, but the neuro says that she would not find these tests useful.
I'm wondering if I should get another opinion. Why not run a spinal tap? I'm in a big city and the neuro is fairly prominent and an MS specialist at a big hospital. My relatives neuro (in a different city) says that he would do the spinal tap.
2)CIS and symptoms
Is it common to have a CIS status and persistent symptoms? Again, following steroids, my symptoms are fatigue.
2 questions:
1)CIS and testing
It seems that I fit into the group called Clinical Isolated Syndrome, having had 2 demylinating events - not enough activity for a definitive diagnosis. My neurologist seems to have a very wait and see opinion and appears very skeptical that my case will develop further. The majority of the reason seems to be on my age, early 40's. I've asked for further testing that may give some more indication, particularly since I have MS in the family, but the neuro says that she would not find these tests useful.
I'm wondering if I should get another opinion. Why not run a spinal tap? I'm in a big city and the neuro is fairly prominent and an MS specialist at a big hospital. My relatives neuro (in a different city) says that he would do the spinal tap.
2)CIS and symptoms
Is it common to have a CIS status and persistent symptoms? Again, following steroids, my symptoms are fatigue.