Quality of Life Post
Posted: Sun Mar 09, 2008 12:07 am
Hi, I don't want to mislead anyone. A patient told me about this site and I am not here to plug my office, a treatment or ask for money but I would like to ask the MS community for some input and a few minutes of your time. I do not want to intrude on your community so I thought I would ask before posting anything further. There are many people in the world who are not sincere so I was not sure the best way to ask for help without anyone thinking I was trying to do something wrong.
Would it be ok if I posted to tell you all about a web portal that a neurologist, a few others, and myself have been working on to track quality of life in patients with chronic illnesses. Right now we are working on the MS module. I am hoping to secure funding from the NIH or other companies/agencies. There is a market survey with 10 questions that we would like MS patients to fill out just to see if we have a viable product and to use when talking to companies about funding the portal.
I will check back Monday afternoon and if I dont have a zillion replies telling me to "buzz off and get lost" I will post a more through post with a link to the survey. In the meantime- the website is http://www.betterqol.com if you just want to read a little more about what we want to do.
P.S. I very much know what you all go thru on a daily basis. That is why this portal means a lot to me.
Best regards,
Blake
Would it be ok if I posted to tell you all about a web portal that a neurologist, a few others, and myself have been working on to track quality of life in patients with chronic illnesses. Right now we are working on the MS module. I am hoping to secure funding from the NIH or other companies/agencies. There is a market survey with 10 questions that we would like MS patients to fill out just to see if we have a viable product and to use when talking to companies about funding the portal.
I will check back Monday afternoon and if I dont have a zillion replies telling me to "buzz off and get lost" I will post a more through post with a link to the survey. In the meantime- the website is http://www.betterqol.com if you just want to read a little more about what we want to do.
P.S. I very much know what you all go thru on a daily basis. That is why this portal means a lot to me.
Best regards,
Blake