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Posted: Sun May 25, 2008 7:36 am
by jimmylegs
hi there, i have definitely had problems taking my mag and zinc with my d3. so i'd say yes, do keep it away from your multi.

but, a good b-complex along with your half dose b12 at bedtime should actually work very well with your mag and zinc.

even just doing your 1000mcg b12 at bedtime with your mag and zinc sounds like a big step in the right direction to me.

i'm doing all right myself, thank you for asking :) no i have only ever taken supplements for this, so far. i'm definitely compromised in the spinal cord, and i don't know if that will sort itself out in years to come but i hope so. it's so much better now though - only notice it when i get heated up from exercise. hot water in the shower doesn't bug me or anything. plus i still have the oven mitts, but they say that's the carpal tunnel thing, not the ms. maybe one day i'll need some kind of prescription but i've been ticked off with prescription solutions for about 15 years or so now, couple of stories there. i hated supplement pills too, until all this stuff happened to me!

Posted: Sun May 25, 2008 7:41 am
by jimmylegs
who am i kidding, i still hate them, it's just that they work so i'm kind of stuck with them ;)

Posted: Sun May 25, 2008 8:18 am
by Terry
JL

I'm with you on the med hating. I still only do the homeopathic thing and have been adding the supplements with your help. I worry that I'm not being proactive enough sometimes, though. Had a bout of ON and peeing issues and "carpal-tunnel" (really think it is MS), and itchy-needle sensations in my legs that would make my muscles jump- all recent. Doc increased my homeopathic dose and told me to take it two weeks apart for 3 weeks- last dose this next Tuesday and I'm to call him two weeks later. Actually, all is better, except maybe the peeing. This is all such a crap-shoot. I guess just as others say- we have to decide what is best for us and trust ourselves.
It is good to know that I am not alone in not wanting the meds.

Terry

Posted: Sun May 25, 2008 9:01 am
by jimmylegs
ha, omg you're like my twin or something terry. i totally used to get the itch-needle kind of jimmyleg haha! haven't had it in some time though.
i vascillated around whether it was due to low iron, or zinc, or magnesium, and i've settled on "all of the above"!

glad you're doing better. what's your peeing issue again? i feel like i have to go when my bladder's hardly got anything in it, but i've been like that for years and years and years. i haven't really devoted any particular attention to it yet.

you're being SO proactive. if you stock up you're body's stores for all it's crazily complicated, interconnected biochem requirements, you're giving it exactly what it needs to fight the good fight. i like those sayings that go like, you're not sick because you're body is low on CRABs hehehe

do trust yourself, you're the one who has to live with you 24/7 :)

hopefully the zinc you're taking now will help prevent any more optic neuritis. you'll want to get it tested at some point though, i don't think you'd need to keep taking 75mg per day in the super long term. could drop it back to every other day, or every three days once you know you're in the middle of the normal range.

you know, i have sort of wondered if my episodes with my brain last summer were related to my nasty zinc deficiency, but also if it was maybe a faint link to ON. it definitely felt like it was something to do with my left eye, kind of a bad connection.
More severe cases of zinc deficiency will cause a stop in growth and maturation of children, sometimes resulting in a form of dwarfism. Poor testicular functioning can result. There will also be increased problems with the eye such as, optic neuritis, cataract formation, and poor color formation. Zinc deficiency will also lead to immune disorders, and dermatitis. A lack of zinc is also found to result in anorexia. Researchers believe zinc is used by the body in some way to create appetite, and without zinc in the body there is no appetite.
oh this is really interesting.
J Am Optom Assoc. 1981 May;52(5):409-14.
Nutritional effects of zinc on ocular and systemic physiology.
Yolton DP.

Zinc, an essential mineral in human nutrition, has multiple and complex ocular and systemic functions. Zinc deficiency is characterized by growth retardation, reduced appetite, skin changes, impaired reproductive development, impaired taste acuity, and impaired wound healing. Zinc deficiency may also cause or contribute to learning problems. Observations of Denver children have suggested that suboptimum zinc nutriture may be quite common in otherwise normal infants and children in the United States. The most likely cause of this deficiency is dietary insufficiency. High concentrations of zinc are found in human ocular tissues and are closely related to visual function. When zinc levels are inappropriately low, results can include ocular birth defects, reduced ability to dark adapt, excessively low IOP, and optic neuritis. Correction of zinc deficiency with zinc supplementation must be done cautiously because excessive zinc can interfere with the metabolism of copper and zinc.

Sleep sweet sleep

Posted: Sun May 25, 2008 4:26 pm
by msmything
I haven't slept thru the night in years. My wakeup is 3am. It doesn't matter what I've done during the day, eaten, or had to drink. I've tried staying up late, going to beed earlier, lavendar baths, prescription and non prescription medication. I didn't link it to MS..cause I'm a woman of a 'certain age' and just figured it went with the territory.

Another MS irony? Too tired to sleep.

I have had rare uninterrupted sleep now and then, maybe 6 hours, and honestly I feel like a different person. It's as if there's healing going on in restorative sleep. I have increased sensation in my hands, and greater coordination.

One of the reasons I chose my current neuro is that he's 'certified' in sleep medicine. Whatever that entails. Maybe I get to have a sleepover...

Posted: Sun May 25, 2008 5:11 pm
by jimmylegs
sleepover - lol, m! well my mother has been sleeping poorly for years and years, had that waking at 2am, 3am thing happening. i got her onto bedtime magnesium and she is sleeping through the night for the first time in as long as i can remember.
a good healing sleep is sure worth it - a few people on here are seeing sleep improvement benefits taking from 250mg-600 magnesium at bed time.
if you've read back a few posts about the recent discussion on b12 - we're still working out whether taking that in the morning interferes with sleeping patterns.

Posted: Mon May 26, 2008 5:56 pm
by jimmylegs
repeated posts, any info?
sleep, whats that?
so what time of day are you taking your b12? did you get a complex yet or are you still taking plain b12?
and from before...
did you start your b-12 after the mag-zinc routine?
how many days have you been on b-12 before noticing disturbed sleep again the past couple nights?

Posted: Wed May 28, 2008 2:02 pm
by Artifishual
Went to my nuero today, he is sending me to a sleep study. Where you go and sleep while they monitor your breathing, motion, pretty much everything, maybe even erections , LOL not really. I also went to my urologists and recieved 300 of depo testostrone, i got him to draw blood and check along w/ my test also vitamin levels and cholesteral(sp). So I will post results thanks HS, later

Posted: Wed May 28, 2008 7:41 pm
by jimmylegs
good stuff :) seriously though, if you're still having trouble... what time do you take your b12???? do you have a b-complex yet?
'skillet

Posted: Thu May 29, 2008 12:47 am
by Artifishual
Early AM.

Posted: Thu May 29, 2008 4:40 am
by jimmylegs
k stop it. take it at bedtime.
'skillette

Posted: Thu May 29, 2008 5:06 am
by Terry
Hey JL,
I've been cutting my B12s in half and taking them at different times of the day- that more from not being organized than anything. So far, I'm sleeping fine.
Thanks much for your help!
Terry

Posted: Thu May 29, 2008 6:26 am
by jimmylegs
that's awesome terry, glad it's working for you! hope it continues.

Posted: Fri May 30, 2008 2:10 pm
by jimmylegs
arti did u switch your b12 to evening? sounds like that strategy is working for terry so far.

Posted: Fri May 30, 2008 2:39 pm
by Cyclops
I used to suffer insomnia though it had nothing to do with MS. I bought a 'Mind Machine' sometimes called a 'sound and light machine'. Its a little device that comes with a set of light-glasses and headphones - the lights flash and the sounds pulse until you drift off to sleep.

Basically what happens is your brain waves tune in to the frequency of the lights and you go into a deep relax state. It works really well.

You can pick them up for about $150.

http://www.meditations-uk.com/products/sirius.html

Cyclops