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Posted: Thu Jun 19, 2008 8:53 am
by Loobie
I agree GWA. Everything up to the point where I'm at was so spot on to what I have felt and thought. My neuro. and coordinator are both getting a copy on Tuesday when I go in for Tovaxin shot #4. Like Dom said, you really can't quite relate until you are actually in that situation, but I think it brings an understanding that is much clearer than the raw EDSS.
Posted: Thu Jun 19, 2008 8:58 am
by FIESTAFROG
I guess im a 1.0 then. No disability but have vertigo. That seems to be my FS?
Posted: Thu Jun 19, 2008 4:37 pm
by msmything
Dom, I agree that there is so much more to this disease than the tracking of physical disability
That said, Robbie the info you posted is fabulous, and right on the money.
I find for me that the worse my physical symptoms get the more I miss the full use of my brain.
Where it was at one time the most horrifying thought to me to need assistance with walking, it's way worse and far more scary to feel so many days that I need assistance with thinking!!!
Posted: Fri Jun 20, 2008 2:14 am
by MrsGeorge
Am 3.5 to 4.5
Disability scale and mood
Posted: Fri Jun 20, 2008 12:34 pm
by 2gentle
Robbie,
When I see my neuro next week, I am taking a copy of this w/me, for her to read, and I will refuse to leave UNTIL she reads it!
This is powerful!
Thank you for sharing it.
Diane