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anyone quit betaseron?
Posted: Thu Jul 24, 2008 6:21 am
by lgooch
Has anyone used and quit beta seron? I am thinking that the med's are making me worse. I immediately started the drug after I was diagnosed. I seem to have went down hill from there. I am considering quitting the med's. My Dr. says I should stick with it but its been 16 mo's. I am kind of afraid to quit, I cant get any worse. any advise would be greatly appreciated.
Thank you,
Lisa
Posted: Thu Jul 24, 2008 8:44 am
by Loriyas
Lisa
I was originally on Betaseron but it caused elevated liver enzymes so I had to switch to Copaxone. I also felt lousy on Betaseron and have been pleased with Copaxone. I have been on it for 5 years. Don't get down about having to change. There are several things you can try to see what works for you. See your doctor and ask that you be changed to something else. Keep trying until you find something that works for you.
Lori
Posted: Thu Jul 24, 2008 9:22 am
by Quest56
Lisa,
I used Betaseron for a few years in the mid-90s. I eventually stopped taking it because of the negative effect it had on my mood. I tried for awhile to counteract this with a serotonin reuptake inhibitor (Zoloft), but eventually gave it up altogether and switched to Copaxone. I have been using Copaxone now since 1998 without problem.
--Tracy
betaseron
Posted: Tue Aug 05, 2008 3:19 pm
by mickb
Hi
I took one shot and got deathly ill, This wasn't like any flu that i've ever had. I never took a second. I was dxed wth ppms in 2000
Mick
Posted: Fri Aug 22, 2008 7:30 pm
by tt89
Hello. I was dx in Feb 08. Placed on Betaseron. I toughed it out only a few months, nothing compared to you but I spent every single day sick as if I thought I'd die. It was bad for me. I never want to feel that way again.
Currently have been switched to Copaxone.
Sincerely, T
I want to quit!!!
Posted: Fri Sep 26, 2008 12:06 pm
by doodle
I hurt all the time! I want to quit. I have been on it for about 4 months, i hurt, hurt, hurt.....achey all the time.
My symptoms were not this bad. I understand how you feel.
Switched to Copaxone 6 months ago
Posted: Sun Oct 05, 2008 4:07 pm
by srovski2008
Betaseron caused my thyroids to act up and I had to stop. I've switched to Copaxone 6 months ago and besides the stinging needle pain (5-30 mins), I like it 100% more (not flu like symptoms, no headaches...etc).
Cheers,
S.
Posted: Mon Oct 06, 2008 1:13 pm
by msmything
I went fron Avonex, 1x wk, to Betaseron as my Doc wanted to get 'more aggressive'. I feel, looking back, that I was barely functional for the 6 mos. I was on it.
I was switched to Copaxone, and have experienced virtually no side effects. I felt increasingly better since the week after I stopped Beta.
My neuro said that 'clearly the interferons don't agree with me'.
I'd have to agree.
I think you need to have a good sit down with your Doc. If he's unwilling to consider anything else you need to know why, then the tx can be more bearable. Best to you