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Posted: Fri May 15, 2009 4:41 pm
by msmything
Robbie, I'm wondering if you got your pulse, how do you feel, I hope you got the results of your dreams....
I've droped now to about 30mgs per week, it hurts like heck, it's torture getting of daily x 15 or so years...ARGH
It's such a little pill, it right in my purse, and it will make me feel so good...
Posted: Fri Jul 03, 2009 6:06 am
by robbie
Just started my pulse today, the next month or so will be heaven.
Posted: Fri Jul 03, 2009 6:15 am
by msmything
YEAH YOU!
how mauch are they giving you, and over how long?
Posted: Fri Jul 03, 2009 6:18 am
by Lyon
.
Posted: Tue Jul 14, 2009 6:51 am
by robbie
Down to 40mg a day now and the thing that has been affected the most is the spasticity in my legs.transfering from chair to chair or chair to toilet is not so bad. I can straiten my legs without them going into convulsions, it’s nice. The cost benefit ratio of this little white pill is great, wish i could just stay on it.
Posted: Wed Jul 15, 2009 1:57 am
by CureOrBust
I have continued with my 3 days of a monthly pulse of 75mg/day.
I am not as affected by MS as robbie, and do not notice the changes as distinctly. But I definitely do notice a difference. I am limiting myself to three days, with no taper, as I have found this works best for me during a relapse. ie Bang for mg of steroids.
I have been very lucky, as for the last six months I have been working from home mostly, and therefore have managed to stay away from the festering petulance that is spread in an office environment. A cold/flu is my only known trigger for a relapse, so by avoiding an infection, I have also avoided having a relapse for the past six months (I think).
Posted: Mon Jul 20, 2009 8:12 am
by robbie
Got some more prednisone from a friend so I will try staying on 30mg a day till it runs out and see how I feel.