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EBV research

Posted: Wed Nov 19, 2008 9:07 am
by bromley

Posted: Wed Nov 19, 2008 9:25 am
by patientx
I would tend to believe this. At one point in my workup, I had a blood test fro EBV antibodies, and it showed high levels on the IGG test. The doctor didn't flag this at all, said it just showed past exposure and a lot of people have it. I wonder if doctors in general should be looking at more closely at EBV levels on their MS patients.

Posted: Wed Nov 19, 2008 11:40 am
by Wonderfulworld
Very interesting.
I too developed EBV at age 19 and dx with MS at 25.

Posted: Wed Nov 19, 2008 4:28 pm
by Terry
I don't know how old this is, or if it has been posted before, but it is interesting.

www.medlink.com/web_content/index/MLT000FL.asp

Posted: Wed Nov 19, 2008 8:25 pm
by rainer
Encouraging to see people are still pursuing this angle.

Posted: Thu Nov 20, 2008 2:41 am
by bromley
A piece on the Australian MS Society website about this research:

http://www.msra.org.au/news/index.php

Epstein Barr & MS

Posted: Thu Nov 20, 2008 7:14 pm
by Cojack
In my case i'm positive it's Epstein barr roaring up my spine/or the anti bodies.....i had it about 20 yrs ago for a year and a half...extreme fatigue...i've asked to be tested for it/to no avail/i suppose nothing they can do anyway...however...i eventually got over it for the most part on time release vit c,forcing myself to exercise an increment more each day, and tagamet...if you google tagamet AND MS....from memory...i think there's a plethora of links mentioning that that was the going treatment back then...something about tagamet...mollifying the suppressor t cells? i think the doc told me to take it the rest of my life...but of course i discontinued it 20 yrs ago...if any of you can make sense of that...

jack

Re: Epstein Barr & MS

Posted: Fri Nov 21, 2008 4:44 am
by CureOrBust
Cojack wrote:i eventually got over it for the most part on time release vit c
That caught my interest a bit. It was over 20 years back I had EBV. I remember that my glands were swollen for a few days, and then the lethargy hit me like a ton of bricks. I took MEGA doses of Vitamin C and over the next 2 days the lethargy (and the swollen glands I think) were gone. The doctor I saw (just before the lethargy) told me I would be hit for 7-14 days. Its interesting you may of found VitC just may of helped also. :?

Posted: Wed Dec 03, 2008 6:12 pm
by Cojack
Cure,

you had it for that short a time? Hmmm...i had the lite sore throat, cog, fatigue for over a year or so....finally got tested for it/came back "reactive" ...evidence of a past infection with EBV"....does this mean anything? do tests come back with stronger or active results? i'm wondering if tagamet would do anything positive again...considering the inciting Aussie study that certain immune systems are susceptible to it...i'll quit rambling.

jack