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Bad Case
Posted: Tue Jan 13, 2009 10:21 am
by Cougar
Hi everybody, my mom was diagnosed about two months ago and since then has not started any medication. Her insurance company has only approved the Avonex, which her doctor will not approve because of the side effects and her small stature. The problem is that since she isn't on any thing to stop the progression it is just getting worse and the insurance company will not budge. Do you have any ideas to help us get through this road block?
Posted: Tue Jan 13, 2009 10:32 am
by jimmylegs
hi cougs welcome and sorry to hear your bad scenario.
what exactly has been your mom's progression of symptoms over time, and is she on any other medications? does she have any other diagnoses besides ms?
i am not the one to advise on drug selection or dealing with insurers.
but... nutrition management is one way to take control, but it sounds like you'll have to foot the bill for tests and of course for any supplements taken. can your mom afford to do some bloodwork?
if you are interested in hearing about some supplements you can read a bit of an overview i just posted in the ms pain please describe yours topic. it was near the end in response to dixie.
hope this helps, ask me anything you like if you think your mom will be interested in pursuing this approach.
JL
Posted: Tue Jan 13, 2009 11:17 am
by Miss_Feisty
Greetings Cougar
Do you know what drug the doctor does recommend? Or is the doc proposing none of the other meds because of their side effects too?
If the doc proposes another medication and you CHOOSE to try it, contact that company. Sometimes the pharmaceutical company will offer financial assistance with the med.
If nothing is recommended at this time, as jimmylegs proposed have a look around here. There are some alternatives for people who seek them out.
If the insurance company is giving grief and accusing mom of not accepting a treatment, try contacting your ms society. This is a road they would have experience with.
Posted: Tue Jan 13, 2009 11:51 am
by Loriyas
Hi Cougar!
What is happening that makes you say that things are just getting worse? Is she currently having an exacerbation? If so, perhaps a course of solumedrol is the course of action at this time. What does the doctor say? Would the doctor talk with/write to the insurance company explaining his reasoning for not wanting her on Avonex?
Lori
Posted: Tue Jan 13, 2009 2:24 pm
by DIM
Welcome aboard, our insurance pays almost all known medications but we decided for my wife that LDN is better for her case although is the only that we have to pay, the cost of it is ridiculous in case you have no other choices!
I say again in case you have no other choices, as Jimmy says I don't want to affect your decision, it's up to you!