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Posted: Mon Feb 09, 2009 2:39 pm
by chrishasms
You need to do a treatment like HiCy or Campath to stop the progression now while it's still small. You may want to try tysabri but that immune system modification therapy scares me.
I'm sure others on here will tell you I am nuts too lol.
Posted: Mon Feb 09, 2009 5:13 pm
by cheerleader
Welcome to the boards, Kitty-
Sounds like you're having a bit of a flare in an area you've already had problems with before. Same thing happened to my husband last week...his feet went numb for several days, and we went to his neuro. It was the same thing that had happened to him at his first flare 2 years ago. By the time we saw her, the numbness was gone. His mini-flare was due to stress and lack of sleep. He's feeling better now, and his feet are fine. He's also on copaxone, the Swank diet and lots of supplements.
Talk to your neuro. If the numbness doesn't go away on its own, your doc will have suggestions. Try not to freak out...hope you fell better.
AC
Posted: Mon Feb 09, 2009 8:23 pm
by chrishasms
The campath is chemo on a pulsed format.
Revimmune is 4 days of High Dose chemo that literally reboots your immune system. It's safe and other than feeling like the flu for 4 days it's relatively easy.
I liked it because it's a one time dose for 4 days and its done. Plus I know of no other treatments that stop progression or allows the MS lesions to heal.
Posted: Tue Mar 17, 2009 12:21 pm
by cheerleader
Petakitty wrote:
By the way this seems like a really nice forum. There are some forums that stress me out a little. This forum is real positive, makes me feel a little better reading the posts here.
Just reminding how nice and positive we are here at TIMS
Folks like carepear, sojourner and others deserve the same, stress free response....
Did the numbness on your knee ever go away or resolve, kitty?
AC
Posted: Tue Mar 17, 2009 12:37 pm
by jimmylegs
i ended up back on this thread yesterday too cheer, thinking alike i guess!
Posted: Tue Mar 17, 2009 12:54 pm
by cheerleader
Hey Jimmy,
great minds, etc.
just read some more threads. Think I need to add more names to the list
Hello...moderators? (tap, tap) Is this thing on?
MEEE--OOOWWWWW!!
AC
Posted: Tue Mar 17, 2009 6:38 pm
by catfreak
I missed this thread while I was gone for a week of training on my job so I am going to chime in.
PK, I have a lot of numbness here and there on my legs, feet and arms. I have one spot right above my right foot that sounds like your leg. Sometimes it feels like it's not my skin at all really rubbery and odd feeling.
I was on neurontin for 3 months and did not see any benefit for the weird sensations and numbness.
Now I will see how the Tysabri works for me since i am off Rebif. I will have my first infusion on the 26th.
Hope you have gotten better by now. Also, where did the name Petakitty come from?
CF