Posted: Fri Feb 13, 2009 7:04 pm
.
This Is MS Multiple Sclerosis Knowledge & Support Community
Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. Join our friendly community of patients, caregivers, and researchers celebrating over 20 years of delivering hope through knowledge.
https://www.thisisms.com/forum/
Stem Cell Transplant Segment on The Early Show
Page 2 of 3
Posted: Fri Feb 13, 2009 8:21 pm
.
Posted: Fri Feb 13, 2009 11:21 pm
Just an FYI. My friend works at Northwestern and knows Dr. Burt and says he's a great guy. I actually missed the story but everyone I know who knows that I have MS has told me about it.
Posted: Sat Feb 14, 2009 6:41 am
Take it from me folks. High Dose Chemo is easy. The next time you have a flu that causes you to throw up...hey- you've just had chemo! That's all there is too it! Don't be scared! No reason, MS already made you much sicker!
The biggest difference is when you wake up on the 5th or 6th day and your bladder works again, or you can stand up with your eyes closed and not fall over, or stand in a non HC shower, or your eyes don't seem dim anymore, or...you get the drift! 3-6 months later is even better!
I may be the wrong person for a non biased opinion but I personally find it offensive Neuro's are not jumping on board all over the country but alas I fear the Hippocratic oath is for preventing malpractice suits and not helping people. There is no reason I and countless others have stopped progressing, has lesions healing, and EDSS scores going down, and the rest of the world with MS isn't.
But then again with people like a few in this forum running MS organizations for helping people with MS, its no surprise. If MS was gone some people would have no job so why would they help to promote a procedure that ends the disease progression?
The biggest difference is when you wake up on the 5th or 6th day and your bladder works again, or you can stand up with your eyes closed and not fall over, or stand in a non HC shower, or your eyes don't seem dim anymore, or...you get the drift! 3-6 months later is even better!
I may be the wrong person for a non biased opinion but I personally find it offensive Neuro's are not jumping on board all over the country but alas I fear the Hippocratic oath is for preventing malpractice suits and not helping people. There is no reason I and countless others have stopped progressing, has lesions healing, and EDSS scores going down, and the rest of the world with MS isn't.
But then again with people like a few in this forum running MS organizations for helping people with MS, its no surprise. If MS was gone some people would have no job so why would they help to promote a procedure that ends the disease progression?
Posted: Sat Feb 14, 2009 6:41 am
.
Posted: Sat Feb 14, 2009 9:54 pm
I do plan to watch the videos but I can't from home because I have slower than molasses dial-up. I'll watch them at work. Not like I'll have more important things to do, right. 
The research is definitely exciting but I have to admit that I am one of those people who freaks a little when they hear chemo. I'm sure I would feel differently if I wasn't currently doing well. It's also true that most of the current and pipeline MS drugs are kind of scary too, so it's not such a big leap if you look at it logically. I guess I'm just waiting and hoping for them to say that they found the cure for MS and it's CHOCOLATE!!
Judie
The research is definitely exciting but I have to admit that I am one of those people who freaks a little when they hear chemo. I'm sure I would feel differently if I wasn't currently doing well. It's also true that most of the current and pipeline MS drugs are kind of scary too, so it's not such a big leap if you look at it logically. I guess I'm just waiting and hoping for them to say that they found the cure for MS and it's CHOCOLATE!!Judie
Posted: Sun Feb 15, 2009 8:26 am
.
Re: Avatar Image
Posted: Sun Feb 15, 2009 8:40 pm
Hi Petakitty,
Welcome to the ThisIsMS community. Please review the forum's guidelines for using an avatar photo. They state that the image must not be more than 80 x 80 pixels.
Thanks, NHE
Welcome to the ThisIsMS community. Please review the forum's guidelines for using an avatar photo. They state that the image must not be more than 80 x 80 pixels.
Please resize your current avatar photo using image editing software or use a different photo which conforms to the above guidelines.ThisIsMS wrote:Avatar control panel
Displays a small graphic image below your details in posts. Only one image can be displayed at a time, its width can be no greater than 80 pixels, the height no greater than 80 pixels, and the file size no more than 6 KB.
Thanks, NHE
Posted: Mon Feb 16, 2009 1:16 pm
Well as they are learning about HiCy, there isn't a long term effect because it's not in your system long enough.
As far as the other chemo's offered, I really have no idea.
As far as the other chemo's offered, I really have no idea.
Posted: Mon Feb 16, 2009 1:57 pm
how long has it been for u chris?there isn't a long term effect because it's not in your system long enough.
Posted: Mon Feb 16, 2009 3:58 pm
.
Posted: Mon Feb 16, 2009 4:56 pm
I will be 1 year out March 13th.
As far as I am concerned it is a travesty what I did is not the standard for MS treatment, especially when there are 50 of us...well more if you include all the other Autoimmune diseases...who can't imagine life without it.
The issue is with HiCy the chemo is out of your system within 48 hours of the last dose where other chemo's stay in the body for months if not years.
As far as I am concerned it is a travesty what I did is not the standard for MS treatment, especially when there are 50 of us...well more if you include all the other Autoimmune diseases...who can't imagine life without it.
The issue is with HiCy the chemo is out of your system within 48 hours of the last dose where other chemo's stay in the body for months if not years.