This is a letter I got this morning for Ploymyositis
Posted: Wed Mar 18, 2009 6:49 am
Hi Chris,
I did HiCy at Hopkins this November for my Polymyositis and am doing very well. I hope you are as well. I have a friend with MS that would like to do HiCy but she said Hopkins wouldn't have anything to do with her because she is not recurring and remitting and not in a wheelchair. I am not sure if she talked to the right person. Did you remember any of these restrictions? I had my Hopkins doctor talk to Brodsky so I got in easily. What are the beginning steps to get in the door?
Also, I wanted to let you know that having your Post-HiCy Care on your site was very helpful. I did not get the same info and it was useful now that I got Shingles. Fun fun.
Thanks again,
Jen
**Another condition for Revimmune**
I did HiCy at Hopkins this November for my Polymyositis and am doing very well. I hope you are as well. I have a friend with MS that would like to do HiCy but she said Hopkins wouldn't have anything to do with her because she is not recurring and remitting and not in a wheelchair. I am not sure if she talked to the right person. Did you remember any of these restrictions? I had my Hopkins doctor talk to Brodsky so I got in easily. What are the beginning steps to get in the door?
Also, I wanted to let you know that having your Post-HiCy Care on your site was very helpful. I did not get the same info and it was useful now that I got Shingles. Fun fun.
Thanks again,
Jen
**Another condition for Revimmune**