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Posted: Mon Apr 13, 2009 7:37 am
by peekaboo
Hi marc -

I watch too much TV although i like to watch quality TV ;) I watch discovery health channel and they have a series called mystery diagnosis. below is a link direct to their list of diseases that you may want to puruse for your quest of diagnosis. Forgive me if this is old news to you. my impression is that you are very thorough. ;) and probably very frustrated :(

http://www.rarediseases.org/search/rdblist.html

[/quote]I've doubted my diagnosis almost from the outset. I've been tested for multitudinous other diseases through the years, but nothing has come back positive. There are other are odd aspects of my case, as I have definite endocrine involvement (low testosterone,, hypothyroid, low cortisol), as well as some vitamin B1 deficiency.
[/quote]

i have endoctrine issues too. i take a supplement called adren - all...is low cortisol a problem? i have high...i also take 100-200mcg of selenium for the thyroid i also take bio-identical hormones est. & pro. no test. my testosterone level was ok. i am 50 & menapausal which prompted me to go this way.

hope this helps....