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Posted: Sat Jun 13, 2009 1:40 pm
by LoveActually
Great advice. Thank you! Thank you! Thank you!

Just an Update

Posted: Thu Jun 18, 2009 9:10 am
by LoveActually
I have completed all my test, the Brain MRI, 72hr EEG, EMG, Labs and 24 urine collection. I have no idea what the urine collection is for but I guess I'll find out.

I've been scheduled for June 26th to come in and get results for all tests. Until then, I'm just trying to not think about it too much. I am however, going to take you guys' advice and make a list of all questions and make a copy for the Doc.

Thank you for your continued support and advice. It is much appreciated.

Posted: Thu Jun 18, 2009 9:42 am
by Loriyas
Just a thought-it is helpful to keep a daily log of symptoms, etc. so that when you are at your doctor's visit you can go over it with him/her. When you are in the appointment it is difficult to remember everything you want to cover so this helps. It also helps the doctor to know.
Lori

Posted: Thu Jun 18, 2009 9:52 am
by LoveActually
I'm actually doing that but not on her request. She seem's to think my issue is just headache's and migraines as she didn't take the time to hear my other symptoms.

She requested I keep a log of my headaches and migraines only. I'm doing that as well but I also have a log that includes everything from my hallucinations to the tingling in my heels.

But now that you've mentioned it, I'll bring a long a copy of that as well. We'll just see if she take's the time to look it over.

Posted: Thu Jun 18, 2009 9:54 am
by Sharon
Glad you are taking control - you will benefit from your efforts.

Sharon

Posted: Thu Jun 18, 2009 10:45 am
by Loriyas
Good that you are keeping a log. While I am thinking about it make sure you also get copies of the written report of your MRI and also a CD of the MRI itself. That way if you change doctors you will have that information. I keep a copy of EVERYTHING-tests, blood work, etc.

Are you seeing a neurologist on the 26th?

Lori

Posted: Thu Jun 18, 2009 7:09 pm
by LoveActually
Thanks for the info Lori. I've already received the CD of my MRI and the Radiologist Report, all from the imaging center. Very nice people there. I've made a note to myself to get written results for all my other tests. I'm also thinking about bringing along a recorder so I can "document" my appt on the 26th. Just in case the first words out of her mouth are damaging ones and I can't focus on anything else she say's after that.

Yes, the 26th is an appt with my Neurologist. My first appt with her was on May 27, 2009. Where she heard a third of my symptoms and did some neuro test by pushing, pulling, poking and moving parts of my body. Not only does she have ZERO people skills but she moves at the speed of light. For everything. It's extremely irritating. When she sent my husband down the hall to ask the receptionist for another prescription pad (our first meeting), that was the last straw.

She did recommend many tests that I've read are used in ruling out other disease's in hopes of getting a proper diagnosis, so I was ok with going through with it. My intentions are to get all the results, collect copies of all of them and then switch docs.

Unfortunately, the military doesn't make that easy. I'll either need to go back to my current GP and tell him why I want to switch and have him put in another referral (hopefully). Or, I change my GP, visit him/her, get a referral and schedule an appt once the referral goes through. Pain in my ass.

Sorry to ramble. But the 26th is D' Day for me, I guess. We'll see what happens.

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by robbie
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