Posted: Mon Jul 20, 2009 7:09 pm
Objectivity has gone right out the window.Lyon wrote:...it seems that objectivity .... has sometimes suffered recently ...
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Objectivity has gone right out the window.Lyon wrote:...it seems that objectivity .... has sometimes suffered recently ...
I'm glad for your comment about how peer reviewed journal MS articles never come out and state that MS is an autoimmune disease. The writers never say this because despite decades and decades of research, not one scientist has ever been able to prove that part of the puzzle for MS. It's only the non scientific articles written by regular journalists that often say "MS is an autoimmune disease of the central nervous system".2) I go to great lengths to document and support what I have to say. It's not a necessity, but it helps keep things clear. For that, I can say I have never read a peer reviewed medical journal article that clearly and directly says MS is an autoimmune illness. They all have some form of direct, indirect or somewhat veiled language that qualifies the thinking, belief, widely thought to be pathology of the condition that generally involves the demyelination within the CNS.
At the request of Dr. Dake, I have a video of me walking one hour before I was admitted to pre-op. I am now a little over two months from the surgery. A new video will be taken in the next week or so. I think I am walking better, but maybe that is my "placebo pill". Maybe a picture will be worth a thousand words!Documentation. code word for proof? FDA approved? someone did it and felt better? how about a series of videos of improved walks
Sharon, with all due respect, walking ability and disability related to MS can be highly variable even when measured for the same individual within the same day. I'm not sure how useful such a video would be as objective evidence, not because of the subjective or placebo element, but because of the high degree of variability. My walking ability varies greatly throughout the day, depending on a number of factors, some of which I think I understand, and many that are truly a mystery to me.Sharon wrote: At the request of Dr. Dake, I have a video of me walking one hour before I was admitted to pre-op. I am now a little over two months from the surgery. A new video will be taken in the next week or so. I think I am walking better, but maybe that is my "placebo pill". Maybe a picture will be worth a thousand words!
I could not agree with you more. My walking ability can change from one room to another. I think we all have an inate realization when things are getting progressively worse or better. Prior to the procedure, I knew that my walking was getting worse - my family did not see it---but, I felt it. Two videos in a three month period of time are not going to be objective evidence to anyone including Dake. But maybe over time, ten or fifteen videos will begin to tell a story. My expectation is the videos show no more disability -- my hope is that they show improvement.Sharon, with all due respect, walking ability and disability related to MS can be highly variable even when measured for the same individual within the same day. I'm not sure how useful such a video would be as objective evidence, not because of the subjective or placebo element, but because of the high degree of variability. My walking ability varies greatly throughout the day, depending on a number of factors, some of which I think I understand, and many that are truly a mystery to me.
more so to show how your ms has progressed.Yet, they use the EDSS scores to measure the success and/or failure of therapies.
The earth was NOT molten when I was young...it was covered in glaciers...please get your facts straightSome people may think that Harry has outlived his usefulness only because the earth was still molten when he was young, but my parents taught me to respect my elders and for that reason I hold untold fathoms of respect for Harry. Partly due to his advanced age he is one of many who can attest to the MS "elifino" effect in which MS can, for no understandable reason, go into remission for many years. What put it into remission? A trauma, medical operation, something you ate?? Elifino.