Page 1 of 1
Fampridine another flop?
Posted: Fri Oct 09, 2009 6:23 am
by scorpion
You have got to be f###### kidding me. I think moving to a cabin in the woods and letting whatever happens happen is looking like a good option.
http://www.bloomberg.com/apps/news?pid= ... xJwE07QFq8
Posted: Sat Oct 10, 2009 8:19 am
by Sharon
What a disappointment!!!
Many MS'rs were looking forward to the drug coming on the market (even thought it was going to cost you an arm and a leg!)
Sharon
Posted: Sat Oct 10, 2009 9:50 am
by Lyon
.
Posted: Sat Oct 10, 2009 10:00 am
by scorpion
hmmmmmmmmm
fampridine
Posted: Sat Oct 10, 2009 11:40 am
by ellen
To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.
Ellen
Posted: Sat Oct 10, 2009 11:52 am
by Lyon
.
Re: fampridine
Posted: Sat Oct 10, 2009 2:44 pm
by CureOrBust
ellen wrote:To the FDA... I want to TRY this drug.....it may work, it may not, but please, at least give me the opportunity to try it at my OWN risk!!! I tried to get in a trial 5 years ago and was told I walked too well. Now I don't walk that well. Just let me TRY it. Very frustrating when I am willing to risk it.
I found a local compounding pharmacist that made LDN for MS'rs, gave them some documents off the net on 4AP, spoke to my GP (this is where I think I was very lucky), and within a few weeks I had a slow release compounded 4AP.
Depending on where in the world you are, there may be a pharmacist that already compounds it for others. Mine had never heard of it before, but easily sourced it from the USA.
Posted: Tue Oct 13, 2009 3:55 pm
by jay123
Yes, it can be compounded easily. My doctor (the late great Dr. Jacobs of the jacobs clinic) was prescribing it 10 years ago. It didn't help me at all though.