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Posted: Mon Nov 02, 2009 3:52 pm
by LR1234
I have heard that too but seeing as I have not had one shot yet of the stuff I have no idea!!

Posted: Mon Nov 02, 2009 4:49 pm
by Absentee
you can actually leave a weeks worth of Copax out at a time at room temp. Cold medicine won't feel good! Autoject is good - takes some of the guessing out of the game.

Shared Solutions (TEVA's MS support group) is sending a nurse out for your first shot, right?

Posted: Mon Nov 02, 2009 5:37 pm
by pager
Having the nurse come out is key! You want to inject the Copaxone at room temp so I do take out a week at a time and leave it in the little kit.

LA, you can do this! I know you can!! And, just remember, each day it does get easier!!! Promise!

Posted: Mon Nov 02, 2009 5:40 pm
by patientx
LoveActually wrote:LR,

I read somewhere that it feels better if you take the dose out of the fridge a few hours before you administer. True?
Actually, that's almost universally recommended. Absentee is right - the cold medicine don't feel so good. And like he (or she) mentioned, i just take a few out of the refrigerator at once.

But I like Lew's idea. He's right; if you get used to the 1 1/4" intramusclular needle, the subq will look tiny.

Posted: Tue Nov 03, 2009 9:27 am
by LoveActually
I believe Lew about the "if you get used to the 1 1/4" intramusclular needle, the subq will look tiny" but I don't wanna find out for myself. I'm sure he understands. :)

Absentee - Yes, the nurse is coming out for my first shot. She said once I get the meds and autoject to give her a call.

Thanks for the tip about taking a weeks worth out. I'll definitely do that.

Posted: Tue Nov 03, 2009 12:36 pm
by Johooper
Sorry about your dx.

About the injections, I have used both Avonex and am currently on copaxone. I find the copaxone injections hurt more than the Avonex. Your pain sensors are on the surface of the skin so the bigger needle doesn't make a difference really. Its the stuff that stings. I am one of the lucky few that ddint get any reaction to Avonex absolutely nothing from day 1. I switched to copaxone because we believed I had NAB to Avonex. I dont make a big thing of it, I stuck a sticker on my auto inject with where to do the jab each day so I dont forget whats next. My bum hurts the most, my tummy the easiest, I get occasional bruising and occasional small lumbs, dont use alchohol wipes just jab and go. My daughter does my arms for me she is 15. My son who is a nurse is worse LOL and I do the others myself.

Jo

Posted: Thu Nov 05, 2009 8:14 pm
by catfreak
LA, So sorry about the DX. But now you can start meds. I did Rebif (YUK!!!) for 8 months, I had site reactions and extreme fatigue from it. No flu like symptoms but the fatigue was unbearable. Now on Tysabri and had the CCSVI procedure.

I wish you the best with Copaxone. The injections were not as bad as I thought they would be and self injecting was so much easier for me. I think is was the POP of the auto injector that got to me.

Hang in there!

Cat

Posted: Fri Nov 06, 2009 10:27 am
by LoveActually
I think is was the POP of the auto injector that got to me.
Thanks for the warning Cat. I just got everything in yesterday and I'm waiting for the nurse to give me a call back to set up an appointment.

I've been considering the CCSVI procedure but we'll see. One thing at a time. :)

Posted: Fri Nov 06, 2009 11:59 am
by jimmylegs
i still haven't bothered with any of the shots or anything for RRMS!
got more used to needles since dx what with all the bloodwork though :S hehe
i guess even tho it's a different kettle of fish taking meds as opposed to giving blood for tests, i would think you'll probably find the needle bugs you less in time too, good luck

Posted: Fri Nov 06, 2009 1:23 pm
by scoobyjude
I think is was the POP of the auto injector that got to me.
Me too Cat, although at first I liked the autoinjector. I had one bad experience and gave up on it. Everyone's different though LA. You may think it's way easier to use the autoinjector but let me assure you that I never thought I'd be able to manually inject and it is a piece of cake. Either way you will be fine. Hopefully you won't have to worry about needles too long anyway. Remember, better things are one their way.( I have to keep saying that to remind myself :D )