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worse

Posted: Sun Nov 22, 2009 9:14 am
by Boopieup
It has gotten worse in a month. I was told by one surgeon that "it's MS caused, most likely, and you need to wear compression hose and walk".
I can't do either anymore.
It has spread from being a from the knee down thing to going above the knees and now the purple part is in the fingers. I wouldn't care what color my body turns to if it just wouldn't hurt or swell.

This whole thing stumps every one of my doctors. I get the response "I don't know" a lot.

At this point my only hope is Dr. D. at Stanford. It's getting to where it is a waste of my time and energy to go see any of my doctors anymore. All I get is the same "I don't know" from them every visit.

:(

Re: worse

Posted: Sun Nov 22, 2009 2:41 pm
by Guest
Boopieup wrote: it is a waste of my time and energy
I can relate. It's very frustrating.

Re: Calling all MS sufferers that have purpling of the legs

Posted: Sun Nov 22, 2009 11:45 pm
by NHE
Boopieup wrote:It has gotten worse in a month. I was told by one surgeon that "it's MS caused, most likely, and you need to wear compression hose and walk".
I can't do either anymore.
Hi Boopieup,
This is just an idea, but have you ever tried or considered using a Theracycle? These are like exercise bikes but they have a motor which drives the pedals. It might help improve your circulation. If you search the forum, I think that there have been a couple of people that have discussed them in the past.

NHE