Primary Progressive MS - Anyone out there?
Posted: Sun Nov 22, 2009 10:40 am
I have been seeing a neurologist at UBC, Vancouver BC since 2008, after many "misdiagnoses" since I began noticing something wrong in 2003. My doctor is not ready to actually diagnose me with PPMS, but seems to be leaning that way. All he has suggested so far is physiotherapy, which can be excruiating. Not knowing for sure is also taking a toll on me mentally. I am gradually becoming incapable of doing minor everyday activities, can no longer shop, do my banking, etc., as my legs become so shaky standing in a line up for anything is impossible.
I saw the W5 program last night, and am wondering if this treatment is aimed at the relapsing-remitting type of MS, or if it will work on PPMS or the Secondary type.
Anyone out there have any knowledge of this fact? I am on a 8-9 month waiting list for my 3rd MRI, which I am hopeful of getting a definite diagnosis from, when I see my doctor in July, 2010.
I saw the W5 program last night, and am wondering if this treatment is aimed at the relapsing-remitting type of MS, or if it will work on PPMS or the Secondary type.
Anyone out there have any knowledge of this fact? I am on a 8-9 month waiting list for my 3rd MRI, which I am hopeful of getting a definite diagnosis from, when I see my doctor in July, 2010.