This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, I'm writing an article on living with MS (among women) and would like as many people as possible who are willing to talk about their experiences? I want the article to be as informative as possible which is why I want real stories and opinions! Any participation would be appreciated so much!

Emma xxx

Ooo! Sounds exciting do tell us more?

Its a uni magazine Im creating and it's a topic close to my heart as my auntie has MS also. I want it to be a personal article and focus on living with the illness rather than all the scientific details. Would you be interested in being featured?

Emma xx

Hello,

My name is Toosje Wright I have been living with MS since the age of 7. It took them 11 years to come up with the diagnosis of MS. I went through a craniotomy when I was 12. I had 19 spinal taps by the time I turned 31, I like to look at as I per year. They finally diagnosed me at age 18 when I awoke with hemiparalysis down the right side of my body. I had also lost my gag reflex, the use of my vocal cords and the right side of my diagphram. I was told in the emergency that everything will probably rectify itself in 24 hours. 10 weeks and 16 feeding tubes later I was well enough to go home. I had, had 16 feeding tubes because they were having a hard time figuring out what combination of liquid diet and medication would sit well with my stomach, so yes I vomitted up 14 feeding tubes and accidently pulled one out when my left arm got tangled up in the tube and by nature I went to stretch out and the tube came along with it. This happened at about 2 am and because they had to use a topical freezing with my nostril they tied my left arm to the bed. My mother came in and asked me why I was tied down and gave me a pen and paper to write down what happened. When she found out I had done it accidently she untied me herself and then went down and yelled at the nursing staff for not asking me any questions as how the tube came out. Well eight weeks later the tube came out for good, and then another two weeks later I was walking out of the hospital as best as I could with a walker. I have since that particular relapse walked in numerous MS walks to raise money and ran it 3 years after my diagnosis. For the last 9 years I have riden and completed the RONA MS bike tour a 75km bike ride to raise money for MS.

your story sounds so inspirational! Would you mind if I contacted you via email to get more information? just incase u dont want to post it on here! I would love to include u in my article if u would be happy enough to be involved!
Emma xx

Emma,

I would be honoured to be in your article!!!!! I have sent you a PM that included my email address.

Toosje

Emma,

I also don't mind sharing on here because if I can help just one person by sharing my story then I feel I have done my job....whatever it is.