Secondary progressive??
Posted: Fri Nov 27, 2009 9:47 am
A you know I have been trying to get re-housed and the MS nurse hs written a letter to support my request. She sent a copy to me and I was a bit shocked to see that she had written that in her opinion I am borderline secondary progressive. That is fucking scary.
She has never said anything like that to me but I have been using a chair since august on and off. Have never fully 'remitted' from a relapse in well over a year now, maybe 18 months. I have just had another relapse as I lost my baby quite late and a combinatoin of losing the baby and the general aneasthetic for the D&C triggered it. My balance is awful, I can't pick up my legs and walking is pretty difficult.
It's just a very scary and upsetting thing to see. I don't know if she means it or if she is just writing it to help. Either way I need rehousing as I am no longer safe on stairs and can't shower withoiut my husband.
She has never said anything like that to me but I have been using a chair since august on and off. Have never fully 'remitted' from a relapse in well over a year now, maybe 18 months. I have just had another relapse as I lost my baby quite late and a combinatoin of losing the baby and the general aneasthetic for the D&C triggered it. My balance is awful, I can't pick up my legs and walking is pretty difficult.
It's just a very scary and upsetting thing to see. I don't know if she means it or if she is just writing it to help. Either way I need rehousing as I am no longer safe on stairs and can't shower withoiut my husband.