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Has this ever happened to you...
Posted: Mon Mar 01, 2004 9:44 am
by OneEyeBlind
My Specialist feels that I probably have MS. ??The good one.?? Mild in frequency. He told me that if I chose I could start on medication but he didn't feel it was mandatory at this time. However, If I deceide I want meds, to just call and he will write a script for me. This is the second Doc to say this to me.
Is this normal? Has anyone else ever had an experience like this?
Please Take Some Medication
Posted: Mon Mar 01, 2004 10:43 am
by VirtuallyFine
No Doctor can tell you what the prognosis is - mild or not - only time can tell you that. I am not sure what your history is - but if time is a factor in what the Doctor has said than yes that is good news, (the longer the time between flair ups, greater recovery and peripheral symptoms all bode well for a milder course), yet there are silent symptoms that you may not be aware of until years of damage has occurred. It is important to get treatment no matter on what course you may be. Please seek medication out. If you want to bounce ideas off me, I am more than happy to respond.
Posted: Mon Mar 01, 2004 4:40 pm
by aeroangel
Hi! May I intrude and ask what your symptoms are and what makes your doc think you "might" have MS. Do you have clinical proof? I am asking as my doc "thinks" the same but I have no proof. Just curious. It helps me to compare with others...even though I know not 2 cases are identical. Thanks so much!
Jenn
Posted: Tue Mar 02, 2004 12:27 pm
by OneEyeBlind
Hi Aeroangle,
I started out with Optic Neuritis in my right eye back in June of 2003. Since then I have been for about 5 MRI's, and 2 Spinal Taps. In August I started noticing itching and tingling in my left hand, ONLY in the ring and pinky finger from the tips up to my elbow only on the outer side of my arm. An MRI of my neck/spine revealed an older lesion there. He said he thinks it is as old as the eye lesion.
The Doc, who is a Neuro/MS specialist, says he thinks...because I have not had a flair or symptom since and my last MRI was clear of any lesions.
Bottom line, I guess, is that I have had no symptoms since last summer. He has nothing more to go on.
To be honest I don't really want to take the meds unless I really need them. Or unless I am really sure.
Posted: Tue Mar 02, 2004 4:14 pm
by VirtuallyFine
Just some more food for thought...in Canada (and I believe other countries) there was a push by the Dr's to have the interferons approved to PREVENT developing clinically definite MS. There has been a co-relation to taking the drugs and not developing future flare ups. (can you tell I am pro-medication?) I don't want you to think you have to - you don't. And in fact there are people that go their entire lives with only one attack. Perhaps I am the cautious type and would rather do everything I could to prevent any future problems...esp if a cure comes around the corner - I want as much of my facilities still in tact as possible for that!
Do what is right for you, but know that there are definite proven benefits to being on treatment. If you don't mind my asking, what reasons are keeping you from going on some form of therapy? (none of my business so please don't feel you need to respond).