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a newbie what do i do? flare up in 2nd week of LDN

Posted: Wed Apr 21, 2010 7:29 am
by pebbles2
I just started LDN 1 week ago for MS which seemed stable apart from not being able to walk more than 5 mins. Started on 1.5mg. slept well, did have pain in my foot in the night, and an in day a bit of an increase in stiffness. Increased to 2mg 3 nights ago. Still sleeping well but an increase in spasms in legs when getting up in morning. Last night was really scary, woke to go to toilet and was really wobbly, plus lots tingling in my hands, felt like I'd done a marathon. I am ok now this morning, took a while to get going and left with a nervous/butterfly sensation in my left leg and balance a little off, think my optic neuritis might be flaring up- haven't had that for a year and half.. Do I keep taking 2mg or drop back to 1.5 for a while? It's a scary feeling thinking I am going downhill

Posted: Fri Dec 03, 2010 3:38 pm
by KDGO
Curious if you are still on LDN...were you able to stabilize with your dose?