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jaspreetdr wrote:Hi all,
I am new to the forum. I am having recurrent transverse myelitis which my neuro thinks could be Devic's disease or PPMS. There is no clear consensus on what treatment will work good for me. So I started myself on LDN. In India it is not available so I crushed and dissolved a tablet of naltrexone and consume an amount equivalent to 4.5 mg. Its been 5 weeks now and I have had no side effects but no improvements either. After how long can I expect to see some significant improvement.

Jas

I've read varying reports but there's an LDN page (I'll try to find the link & post at the bottom of this post) - I've just started LDN and intend to give it at least six months to help; I've got over a year's supply and so far it's been only one night of insomnia & no other side effects, so it's worth a try.

P.S.

How interesting, the ldn.org website wasn't working, then a page came up saying the website may be for sale. I guess they've had to take it down for some reason. There are various support groups at yahoo for LDN & I haven't checked Facebook for one.

However, here's the Wikipedia page for now for what it's worth...

http://en.wikipedia.org/wiki/Low_dose_naltrexone

http://www.lowdosenaltrexone.org/

LDN can cause symptom exacerbation if there is a candida problem in the body. A yeast overgrowth will inhibit it's benefits. As with anything, it isn't a stand alone treatment.

I take it for fibromyalgia. Unfortunately, I've never been able to convince my darling man to take it for his PPMS.

LDN made my spasms worse and rather than give me energy left me feeling fatigued. The reason I wanted to try it was for the spasms, on to the next thing

If you go to www.LDNaware.org on the Resources page there is a "LDN Doctor Letter" which may help your doctor write a prescription.

My Doctor had no problem writing the script, it just didn't work for me