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LDN or Copaxone?

Posted: Sat Oct 30, 2010 11:22 am
by KDGO
After 6 yrs on Avonex I stopped because I didn't think is was doing anything anymore...my old neuro agreed...without any MRIs other than the initial one. My new neuro is suggesting after reviewing MRIs of the spine which has atrophied but has increased multiple foci but do not demonstrate contrast enhancement-there is no formal stenosis- to do monthly IV steroid and go on Copaxone.
I was thinking to try LDN but not sure it would help...since there are no trials I am basing my thinking on patient reports.

FYI
Had CCSVI procedure 8/10 w LIJV lower openend however midsection would not stay optimal. Twisted azygos opened. Mobility issues subside for a few weeks then went back to my cane. Bear hug and floating head above my shoulders was gone for almost 3 months then returned.
Now need to decide on drug protocol...would love your suggestions!

Posted: Sun Oct 31, 2010 9:33 am
by tzootsi
The obvious question - were you tested for re-stenosis?

Posted: Sun Oct 31, 2010 9:58 am
by KDGO
No I have appt 12/16. I was incorrect in stating what reports say
"are of enhancement along the left side of the cord at T8 level" So the steroids and Copaxone would be to subside that activity and to refrain from further enhancements. That is why I question the LDN versus Copaxone.