This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everybody, you’ve all heard from me as I’ve have been recovering from secondary prog. MS for 1.5 years on low dose naltrexone. I attended the 1st annual LDN conference in NYC, and spoke on the LDN advocates panel. In addition to the exciting news that international researchers are going to start trials for MS, I met Art Mellor of Accelerated Cure Project, and he agreed to help organize a fund raising effort for trials in the US. Please see the details at http://www.ldninfo.org/research_funding.htm and contribute if you can. The organizing group started this off with $200 dollars each. Dr Bihari & Dr Gluck have given us their endorsement. Tell everyone you know about this!

To get major research going, all we need is a $20,000 seed fund to get a major academic institution to do some preliminary research, then take that to NIH to trigger a major study. Dr Agrawal, who wrote the first hypothesis on how LDN may affect MS, is also involved as an organizer, so we have some excellent guidance.

SammyJo
My story is at http://LDNers.org

Just wanted to check in with everyone to let you know the status of the fund – we are at 20% of the $20,000 goal already! This means that we have a very doable target to get an LDN & MS study. If you are considering a donation, please do so now before the end of Sept. I will be posting the month end update after this weekend – let’s see if we can make 30% of our goal!

BIG thank you to Dr Skip for helping out. He is including a notice about the fund with all of his LDN prescriptions and billing mail, so we will be reaching several thousand more LDNers.

Ask your LDN compounder if they would like to do this also, if they are interested let me know and I will follow up.

And thanks again to Dr Bihari, Dr Gluck and Joel Gluck for the wonderful page posted for the fund at LDNinfo.org - this is the main link I am directing people to.

I’ve added the fund status to http://LDNers.org, and will include the status in my ongoing posts and discussions about the fund.

Thanks to Art for directing Chris Ratliff my way, Editor of the newsletter for Multiple Sclerosis Foundation, http://msfocus.org She wrote a great review of the LDN conference, and included info on the LDN Fund. And of course BIG thank you to Art and his crew at http://www.acceleratedcure.org for managing the fund collections!

SammyJo