8 months on LDN
Posted: Thu Oct 20, 2005 3:07 pm
Hi
I thought I would give a quick update on my LDN experience. I started it 8 months ago and take 3mg. nightly. I tried 4.5mg for a short while but was having trouble sleeping so I went back to 3mg. I may try 4.5 again...
I really don't have much to say. No relapses, which is definitely good. I've had one episode (last fall) that led to diagnosis, and nothing since. LDN is the only treatment I've ever done. I also take a ridiculous amount of vitamins/supplements. I'm trying to adopt better nutrition and all in all my diet is pretty good. Some days I feel more tired than others and some days my legs are more tired...but of course I also have charcot-marie-tooth, so it's hard to say what affects what. I do get little "blips" sometimes, can happen anywhere on the body, just little jumps, like your vein or nerve is popping...blips on the radar.
I was scheduled to have a MRI at the six month mark (had one just before I started LDN), but switched jobs and provinces and I don't see a neurologist/ms clinic until the end of November so it may be the new year before I get the MRI.
All in all it's good news. There is a lot of stress when switching jobs and moving so far away to a city where you know no one, and I haven't had any problems. No real notable improvements but not worse either. It's enough to not get worse... Of course the real truth will come with the MRI.
I am curious about statins...anyone taking LDN and lipitor/zocor? Does anyone know if you can combine the two?
Thanks!
I thought I would give a quick update on my LDN experience. I started it 8 months ago and take 3mg. nightly. I tried 4.5mg for a short while but was having trouble sleeping so I went back to 3mg. I may try 4.5 again...
I really don't have much to say. No relapses, which is definitely good. I've had one episode (last fall) that led to diagnosis, and nothing since. LDN is the only treatment I've ever done. I also take a ridiculous amount of vitamins/supplements. I'm trying to adopt better nutrition and all in all my diet is pretty good. Some days I feel more tired than others and some days my legs are more tired...but of course I also have charcot-marie-tooth, so it's hard to say what affects what. I do get little "blips" sometimes, can happen anywhere on the body, just little jumps, like your vein or nerve is popping...blips on the radar.
I was scheduled to have a MRI at the six month mark (had one just before I started LDN), but switched jobs and provinces and I don't see a neurologist/ms clinic until the end of November so it may be the new year before I get the MRI.
All in all it's good news. There is a lot of stress when switching jobs and moving so far away to a city where you know no one, and I haven't had any problems. No real notable improvements but not worse either. It's enough to not get worse... Of course the real truth will come with the MRI.
I am curious about statins...anyone taking LDN and lipitor/zocor? Does anyone know if you can combine the two?
Thanks!