New LDN user for MS Secondary Progressive
Posted: Fri Nov 02, 2012 4:17 pm
Greetings all,
As mentionned I am SP since 2005. My edss score is near 6.0.
I can still walk short distances until recently. I am canadian and my doctor
completely refused to entertain prescribing LDN even when presented with
litterature aplenty. The fact it was an off-label prescription was enough for him. Afterwards I went on a 10 month quest to find a doctor who would prescribe it. My initial prescription was 1.5mg for 2 weeks then 3mg for the same time and then the 4.5mg ultimate goal.
After the third week I began to feel more energized especially to my legs.
Today after the fourth week and on 4.5 mg I feel much better energy wise.
I can stand for more than 10 min. than before for 2 to 3min. max.
I can walk on uneven ground longer than I did previously on level ground.
I tend to believe I have gained a whole point on my edss score.
I sincerely hope, God willing that I keep the gains it provided me.
Just thought sharing with you.
Take Care All
Norm B
As mentionned I am SP since 2005. My edss score is near 6.0.
I can still walk short distances until recently. I am canadian and my doctor
completely refused to entertain prescribing LDN even when presented with
litterature aplenty. The fact it was an off-label prescription was enough for him. Afterwards I went on a 10 month quest to find a doctor who would prescribe it. My initial prescription was 1.5mg for 2 weeks then 3mg for the same time and then the 4.5mg ultimate goal.
After the third week I began to feel more energized especially to my legs.
Today after the fourth week and on 4.5 mg I feel much better energy wise.
I can stand for more than 10 min. than before for 2 to 3min. max.
I can walk on uneven ground longer than I did previously on level ground.
I tend to believe I have gained a whole point on my edss score.
I sincerely hope, God willing that I keep the gains it provided me.
Just thought sharing with you.
Take Care All
Norm B