Son's progress with LDN
Posted: Wed Jul 14, 2004 10:32 am
My 16 year old son started LDN over 3 weeks ago. He did not have any complaints, symptoms or outward signs of MS before starting it, so it's subtle changes we are seeing in him, but they are good ones, none-the-less.
He is sleeping really well, better than he has since before his probable diagnosis 3 years ago. He has an abundance of energy, and an overwhelming over-all sense of well being. And, his heat tolerance has improve immensely, which is an added bonus in the Ky. heat and humidity.
The child has been going non stop, something he hasn't been able to do for over 3 years. He says the best way to describe it is to say that he feels like his "old self" again, for the first time since before his illness. Of course, I have to keep in mind that the Rebif that he was using before caused really severe depression for him, so some of this may be attributed to the absence of the Rebif, but we are thrilled with the results so far. He has not had any stiffness at 3 mg. at all. The doctor will determine this week whether to increase the dosage or not.
He laughingly told me last night that he was covered with cuts and bruises because of his new medicine. When I questioned this theory further, I discovered that he feels he is able to do things that he hasn't been able to do in the past 3 years, but he just isn't very good at them anymore, so he seems to hit the ground alot! (He inflicted these injuries by sliding into home base and jumping down from a tree he felt compelled to climb and landing on a piece of glass.) I laughed and then I cried. I do alot of that these days!
Anyway, just wanted to give everyone an update. I hope all is going well for each of you! Take care!
Kim
He is sleeping really well, better than he has since before his probable diagnosis 3 years ago. He has an abundance of energy, and an overwhelming over-all sense of well being. And, his heat tolerance has improve immensely, which is an added bonus in the Ky. heat and humidity.
The child has been going non stop, something he hasn't been able to do for over 3 years. He says the best way to describe it is to say that he feels like his "old self" again, for the first time since before his illness. Of course, I have to keep in mind that the Rebif that he was using before caused really severe depression for him, so some of this may be attributed to the absence of the Rebif, but we are thrilled with the results so far. He has not had any stiffness at 3 mg. at all. The doctor will determine this week whether to increase the dosage or not.
He laughingly told me last night that he was covered with cuts and bruises because of his new medicine. When I questioned this theory further, I discovered that he feels he is able to do things that he hasn't been able to do in the past 3 years, but he just isn't very good at them anymore, so he seems to hit the ground alot! (He inflicted these injuries by sliding into home base and jumping down from a tree he felt compelled to climb and landing on a piece of glass.) I laughed and then I cried. I do alot of that these days!
Anyway, just wanted to give everyone an update. I hope all is going well for each of you! Take care!
Kim