2 month progress on LDN and interesting conversation piece..
Posted: Thu Aug 26, 2004 11:54 am
We had the two month follow up consultation with Dr. Scott for my son's LDN. He has been taking 3 mg and doing really well with it, and Dr. Scott elected not to increase it at this time. I suppose we are going with the "if it ain't broke, don't fix it" theory my 90 year old grandma lives by! I agreed with this, because in case my son develops a "tolerance" to it later on down the line, this still leaves us with somewhere to go, you know? (This is not a scientific theory, it's a "Kim" theory, so don't even ask!)
Anyway, the conversation with Dr. Scott was quite involved and lengthy. (I only wish some of the neuros we have sat down with face to face devoted that much time to us!) Ultimately, he wants new testing done on my son for Lyme - he does not believe he has MS. Trouble is, the new testing is still in the "research" stage, and I am trying to make a decision on this. It is done by Bowen Research & Training Institute in Palm Harbor, Florida. From what I have read, there is a high positive result ratio. This is what I have thought my son had from the start of all of this, since he was covered in tick and mosquito bites when he became ill. There are also some really interesting theories on how Lyme is spread coming about. He wasn't tested at the onset, but a Western Blot was done 8 months later at my insistence. It was negative.
Just wondered if anyone had heard of the new testing or knew anyone who had participated in the research program. Any words of wisdom would be appreciated! Have a great week!
Kim
Anyway, the conversation with Dr. Scott was quite involved and lengthy. (I only wish some of the neuros we have sat down with face to face devoted that much time to us!) Ultimately, he wants new testing done on my son for Lyme - he does not believe he has MS. Trouble is, the new testing is still in the "research" stage, and I am trying to make a decision on this. It is done by Bowen Research & Training Institute in Palm Harbor, Florida. From what I have read, there is a high positive result ratio. This is what I have thought my son had from the start of all of this, since he was covered in tick and mosquito bites when he became ill. There are also some really interesting theories on how Lyme is spread coming about. He wasn't tested at the onset, but a Western Blot was done 8 months later at my insistence. It was negative.
Just wondered if anyone had heard of the new testing or knew anyone who had participated in the research program. Any words of wisdom would be appreciated! Have a great week!
Kim