how can i be perscribed LDN in the uk?
Posted: Wed Mar 07, 2007 6:26 am
The only helpful info I can find is American, and from my experience, we often have to fight for years to get drugs here in the uk that are readily available in the u.s. partially because of money and the national healthcare system, and partially because of over caution and scepticism.
the uk ms society's page on LDN is their typical unhelpful 'sit on the fence' stance of 'some people say it's good, but some people don't and we just don't know enough, so you'd better not.'
I was diagnosed in the u.s. in '96 and imediately put on avonex even before the dx was definate. when i emigrated here to the uk later that year, they took me off of it and wouldn't give it to me because "well, there's just not enough known about it and it's too expensive", whereas now it's accepted by the med field here. i was put back on avonex in '99 and involved in big political campaigns in 2000 to get the drug more widely available here.
(btw, i came off avonex several years ago b/c of my needle phobia and being unable to tollerate the side effects)
so now, after everything i've read, LDN seems like it would be a very very good option for me, but i'm anticipating problems getting it here in the uk (even though it's not expensive enough for the post code lottery to be a big problem.)
i see my MS nurse next monday. what do i do?
the uk ms society's page on LDN is their typical unhelpful 'sit on the fence' stance of 'some people say it's good, but some people don't and we just don't know enough, so you'd better not.'
I was diagnosed in the u.s. in '96 and imediately put on avonex even before the dx was definate. when i emigrated here to the uk later that year, they took me off of it and wouldn't give it to me because "well, there's just not enough known about it and it's too expensive", whereas now it's accepted by the med field here. i was put back on avonex in '99 and involved in big political campaigns in 2000 to get the drug more widely available here.
(btw, i came off avonex several years ago b/c of my needle phobia and being unable to tollerate the side effects)
so now, after everything i've read, LDN seems like it would be a very very good option for me, but i'm anticipating problems getting it here in the uk (even though it's not expensive enough for the post code lottery to be a big problem.)
i see my MS nurse next monday. what do i do?