This Is MS Multiple Sclerosis Knowledge & Support Community

I am so sorry that I haven't been around to fill you in on Colby's progress on LDN. I think of you often, and I guess in this case, no news really IS good news!

For those who don't know me, I am the mother of a 19 year old who was diagnosed with a very progressive form of MS at age 13. After 2 years of Avonex and Rebif, we finally got my son on LDN.

Life is good, really good. Colby has had absolutely NO problems or flare ups with his MS. Most days, we don't even remember that he has it. He's still taking 3 mg LDN nightly, and to keep his current neuro happy, using Copaxone every other day. (He did use the LDN for 2 years alone, with the same results, but the neuro won't prescribe one without the other, so we're still being compliant! )

Colby graduated from high school last year with honours, after almost failing in school the first two years of his diagnosis. He is currently finishing up his first year in college with anticipation of a major in journalism. He works many hours a week at a local Circuit City, and has maintained a job since graduating from high school.

This is all amazing in and of itself, since we were told early into his diagnosis that he would likely be in a wheelchair by now. If it hadn't been for LDN, I'm afraid they might have been right.

Here is a recent pic of him, feeding his face, as usual!

He's beautiful and healthy and has the world by the tail right now!

I just wanted to drop in and say hello, and give those of you who know us and helped us in our quest for LDN an update.

Kim

Hi CCMom!

I was just thinking of you and other people that were regularly posting at the time I first logged on to the site.

I was very glad to read he is doing great and is in college now. Time flies!

Lisa

Thank you, LisaBee...How are you doing?

I see alot of new faces around here, but not so many of the old ones! I hope this means that everyone is doing so well that they don't have time to sit and type anymore!

Kim

Hi Kim,

Sorry I took so long to respond back! I don't have any LDN-specific comments so everyone please overlook that.

My diagnosis was over 2.5 years ago. I am doing well, working full time, doing some gardening, and doing some traveling when I can get time off.
Recently had an eye exam because of concern about near vision changes and have nothing going on there except I have reached that magical "certain age" (let's just say I'm over 40....)

After briefly trying Copaxone, I made the choice to not take a CRAB but instead have focused on diet, exercise, and overall health-improving steps. I have not been perfect in my application of these, and need to get more rigorous about them. One dietary aspect I have been very consistent with for over 2.5 years is the elimination of gluten from my diet (no wheat, barley, rye, etc) and I believe this has helped me a lot in terms of general health. My sister has taken the same steps with considerable improvement in her health as well. Neither my sister or I have been formally tested and diagnosed with celiac disease, but I recently found out my niece, who also has lupus, was diagnosed with it.

That's pretty much it on the personal front -
Lisa