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When to start Ldn

Posted: Fri May 29, 2009 12:50 pm
by jellyphish
I have been recently diagnosis with MS (though have had symptoms for a couple of years, but never underestimate the power of denial huh?), i am making my plan now as to how to best deal with this. Of course, i will do everything in the natural kingdom, diet, supplements and everything that has shown to be of benefit (including acupuncture, chiropractic and massage). But i also want to use chemicals, though sparingly. I have read through much of the literature concerning many of the chemical drugs used for MS and have found the methods lacking what i would call necessary for the use of such strong medication. The only drug that i have read strong anecdotal response has been LDN, but as we are all our own doctors here, how to proceed? Of course i'll approach my GP about it and then go from there (not sure my crappy insurance will cover it, not sure he will be willing to rx it, etc...), but also, i'm confused if this is the best drug to start as a first line? It certainly appears better than rat poison (aka chemotherapy) and the -ferons that were fast tracked based upon previously poorly designed studies. If anyone has advice i would appreciate it...

Posted: Fri May 29, 2009 2:19 pm
by LR1234
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RE: When to start Ldn

Posted: Mon Jun 01, 2009 3:09 am
by NHE
LR1234 wrote:Be careful about chiropractors/massages etc, I have had these done over the years and not had any negative reactions until recently when 2 attacks seemed to co-incide with me having a heavy massage and seeing a chiropractor.
Is it possible that it could've been the chiropractic work and not the massage, or perhaps the particular type of massage? I have had massage in the past and I found it very helpful for dealing with neck and back pain problems that were lingering on after a car accident several years prior. I'm currently having some tight muscle problems in my shoulder and would get more massage for it if I could afford it. The massage work that I have had always left me feeling very relaxed. It never triggered any problems related to my MS but may have actually been helpful for it instead with respect to dealing with tight muscles. Of course, the practitioner giving the massage can make a big difference also.

NHE

Posted: Mon Jun 01, 2009 4:22 am
by LR1234
I was clicked quite a bit with both those massages and one resulted in bruising so that could have been what triggered things. I love massages and find them relaxing, I think if I have them done again I will make sure they ease off on the pressure and the manipulation.

By the way doing very well on the LDN feel a lot better. I am on a dose of 1ml only at present and I can already feel a difference!