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tysabri wash out period
Posted: Sun Oct 21, 2012 12:29 pm
by onesickrace
anyone spoken with their neuros about a wash out period before switching to another drug? im at 48-50 infusions and lookin to switch with biogens new info released about pml for those of us further than 48 infusions... im lookin for an alternate route to the 30 days of solumedrol my neuro is talking about... just curious as to what others might be doing. i posted in the bg12 section and have gotten no replies, so,,, thats why i posting here... thanks!
lee.
Re: tysabri wash out period
Posted: Mon May 20, 2013 4:25 am
by mikro
I'm interested in the wash out period too or more over this in the chance of PML after the last infusion. I've stopped Tysabri three months ago definitiely after six years and started with BG-12 last month. I'm on LDN since about a year. No progression so far but I'm still pretty worried.
Re: tysabri wash out period
Posted: Mon May 20, 2013 11:40 pm
by gymbuff
Hi Mikro,
I had 50+ Tysabri infusions and went off it last September. I had IV steroids in December and started Gilenya in March.
Re: tysabri wash out period
Posted: Mon May 20, 2013 11:53 pm
by mikro
gymbuff wrote:Hi Mikro,
I had 50+ Tysabri infusions and went off it last September. I had IV steroids in December and started Gilenya in March.
Interesting, I read from most who went off Tysabri that they had steriods right afterwards but my neuro didn't tell me about this (I feel neglected).
Re: tysabri wash out period
Posted: Fri Jul 19, 2013 7:10 pm
by jerrygallow
I went off tysabri, against doctors orders in Aug 2012. I am now 13 infusions over due and one year off. I did have my first relapse in five years in March, which is a little over the standard six month period. But it was just some numbness in my fingers and ear along with a few active lesions. So far now, I have leveled off and feel like I always did. I also have done the swank diet for six years, so that my have helped me with the transition off