relapse or something worse?
Posted: Tue Dec 03, 2013 10:28 pm
Hello all, I am brand new to the community. I was diagnosed with relapse/remitting MS in 2008. After a year or so on Copaxone, I got lazy and stopped taking the drug and my doc put me on Tysabri about two and a half years ago. All was going well until may/june of this year when I went in for my treatments every five weeks instead of the standard four week schedule. I did this two or three months in a row, and did so with the approval of the pharmacist at my infusion center. Around this time, I started to notice an increase in muscle fatigue following exercise. I went back to the standard 28 day schedule, but the muscle fatigue has been gradually increasing in severity ever since.
I am going in for an MRI tomorrow, and my neuro has been informed of the situation. I am to meet with her in a few days to discuss MRI results. Before this started, I could run five miles, now I have a severe foot drop that worsens after walking 50 feet. I am also experiencing cognitive fatigue following exercise (the little I can manage).
I would like to know if anyone has any thoughts on this scenario. Does this sound like it could have been caused by the change in tysabri scheduling? does this sound like it stopped working? has my disease become progressive? anything you I should ask my neurologist apart from the obvious, what the hell is going on?!?
Thank you in advance for your perspectives.
-Chris
I am going in for an MRI tomorrow, and my neuro has been informed of the situation. I am to meet with her in a few days to discuss MRI results. Before this started, I could run five miles, now I have a severe foot drop that worsens after walking 50 feet. I am also experiencing cognitive fatigue following exercise (the little I can manage).
I would like to know if anyone has any thoughts on this scenario. Does this sound like it could have been caused by the change in tysabri scheduling? does this sound like it stopped working? has my disease become progressive? anything you I should ask my neurologist apart from the obvious, what the hell is going on?!?
Thank you in advance for your perspectives.
-Chris