Posted: Wed Feb 02, 2005 6:20 am
Harry,
This data was taken from the two trials of one year data that was used for FDA approval.
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This data was taken from the two trials of one year data that was used for FDA approval.
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Why are you inferring that trying to obtain accurate information about two supposed deaths due to Tysabri infusion is an attempt to discredit the drug? We know that Biogen certainly hasn't said anything about this and the readers here and on other MS forums are trying to determine if this is indeed true or simply a bad, false rumor started by Serono. If the rumor is false, shame on Serono and/or others who have started it. If it is true, shame on Biogen for not advising the MS world.The safety and side effect profile of Tysabri is unmatched by any MS drug, and even by few drugs anywhere for any indication. I do not know why there is an attempt to discredit Tysabri on this thread, but you can probably make your own guesses.
I don't know the price of any other monoclonal antibodies but have been reading on another MS Forum that insurance companies are being billed $ 4,000.00 for an infusion of Tysabri! Originally, we were told the wholesale price of Tysabri was $ 1800.00 but that did not include the infusion cost or mark-up on the drug. The person who checked into the pricing for herself was adamant about the $4000.00 price tag so at this point, I am believing her information was accurate.BTW, does anyone know how the price for Tysabri compares to that for other monoclonal antibodies? Are we getting fleeced again?
Please go back and read the messages on this thread. I was not the person who brought to our attention the information about the two patients who died! I knew nothing about this until I read about it here and stated so. I have also urged caution about this rumor and asked others to try and obtain accurate information about it.MeadowStream wrote:You are deliberately trying to sell a rumour and play it off as though others are driving the bus. It is my hope that the legitimacy of this forum does not also legitimize your rumour-mongering
I just noticed a thread in this section that was started by Flora 68, the same person who wrote on another MS forum about the cost of Tysabri from her investigation. It is titled "Anyone else's neuro billing $ 4K for Tysabri"?Let's get a grip on our reaction to hearsay!
There was absolutely nothing wrong with you passing information on about this situation. I, like you, trust the person you are referring to and know that she would not knowingly give false information about MS or anything related to it. I also take the info seriously and want to get to the bottom of it. Unfortunately there are some readers who equate this kind of information as being "negative" to Tysabri. That's their opinion and everyone is entitled to their opinion. But when they start accusing others of "rumor mongering" or "fire crying" because they don't like what they read, I find that unreasonable.Was it the right thing to do to pass on information from a very reliable ms nurse who has ms herself and I've known on a couple of msboards for years? For some people I guess not. To me it's just another piece of info and one I take seriously.
I suspect that the person on the other forum who states that her insurance company is going to charge $4000 for Tysabri is misunderstanding something. Maybe her insurance company wants to do fresh MRIs in conjunction with it. Who knows.
Let's get a grip on our reaction to hearsay!
DenverCO
Ok,
So my best friend, just heard from her dr's office today, and they are telling her that the tysabri treatments are $4000.00 a month, now what is going on with that? Also, they are wanting her to go to the pharmacy and pick it up herself, and another member advised us not to do that, because she would be financially responsible.
so she doesn't know what to do. I told her maybe it was because the insurance companies usually discount the amount, that they are starting high, then maybe it would finally come down to 1800.00 amonth, like we had been hearing.
What do you guys think?
Peggy
Is your friend actually seeing a real doctor? It doesn't sound like it.
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flora68
I asked my wife, who worked in hospitals for many years, what kind of cost would be involved for a person to come in and have an IV infusion over a 2 hour period. She told me that in Canada, the cost could likely be around the $ 500.00 mark....in the US, about $ 1000.00 Now that's in the hospital setting. If you have this done in a special clinic, it would likely be higher.Arron wrote:It is pretty amazing that the doctor is trying to make over 100% profit for the act of providing an hour-long infusion + hour-long observation... ! That neuro is likely not going to be very popular with the Tysabri patients, and hopefully market forces will bring him/her down to Earth.