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Posted: Tue Jan 26, 2010 4:58 pm
by prof8
They now think, based on research studies, that 50% of people have JC virus not the initial 80-90%. So the test would be worthwhile if the stats are correct.
Posted: Thu Jan 28, 2010 7:47 am
by HarryZ
prof8 wrote:They now think, based on research studies, that 50% of people have JC virus not the initial 80-90%. So the test would be worthwhile if the stats are correct.
Dr. Ted Yednock, the auhtor of these studies ( senior management in Elan and inventor of Tysabri) has apparently not publicly published this information nor has it been peer reviewed. I leave it to draw your own conclusions.
Harry
Posted: Mon Feb 01, 2010 2:02 pm
by berriesarenice
HarryZ wrote:prof8 wrote:They now think, based on research studies, that 50% of people have JC virus not the initial 80-90%. So the test would be worthwhile if the stats are correct.
Dr. Ted Yednock, the auhtor of these studies ( senior management in Elan and inventor of Tysabri) has apparently not publicly published this information nor has it been peer reviewed. I leave it to draw your own conclusions.
Harry
point taken.
Re. JCV test, one of my neuros (who is very much in the Tysabri loop, for good or ill) said tests would be available in a week or so. I'm in the US btw.
Posted: Tue Feb 02, 2010 10:59 am
by yonderboy
Very interesting. I'm assuming we are talking about the anti-body test? Did your doctor give any other information - ie: does he/she know where in the U.S. its going to be available first?
Thanks,
John (on the great Canadian frontier, where a typical neurologist's response to questions about the JC Virus test is: ...Huh? What's that?
Posted: Mon Feb 08, 2010 8:51 am
by berriesarenice
yonderboy wrote:Very interesting. I'm assuming we are talking about the anti-body test? Did your doctor give any other information - ie: does he/she know where in the U.S. its going to be available first?
Thanks,
John (on the great Canadian frontier, where a typical neurologist's response to questions about the JC Virus test is: ...Huh? What's that?
Sorry for the delay. I actually didn't have much of a conversation with him about it. I'll give my doc a call today to find out what the update is.
Posted: Mon Feb 08, 2010 12:45 pm
by berriesarenice
Test is not out yet. They'll let us Tysabri patients know as soon as it is. I'll keep you up to date.
Posted: Sun Feb 21, 2010 6:49 pm
by berriesarenice
berriesarenice wrote:yonderboy wrote:Very interesting. I'm assuming we are talking about the anti-body test? Did your doctor give any other information - ie: does he/she know where in the U.S. its going to be available first?
Thanks,
John (on the great Canadian frontier, where a typical neurologist's response to questions about the JC Virus test is: ...Huh? What's that?
Sorry for the delay. I actually didn't have much of a conversation with him about it. I'll give my doc a call today to find out what the update is.
Update: The woman giving me my infusion said that the test got held up for some reason, but they now think it should be available within the month (this could be a full month). It sounded like it would be available everywhere at the same time, not just select locations.