Another one with ITP
Posted: Fri Oct 15, 2010 10:58 pm
Just another anecdote:
2/2007: First (and only) MS-exacerbation, started with Rebif
3/2008: First round of Campath (high dose; off-label)
5/2009-1/2010: Pregnancy (we had some little troubles to conceive), delivered a perfectly healthy baby
3/2010: Second round of Campath (high dose; off-label)
7/2010: Early miscarriage (surprise pregnancy); no chromosomal abnormalities found (had a D&C)
10/2010: ITP
I went to work fine, came home at night still feeling perfectly fine only to discover my legs were covered in bruises and I had gingival bleeds... I knew what it meant so straight to the ER, my platelets were only at 7k, they started steroids but the following morning I had only 3k. Now getting IVIg treatment.
And still feeling fine!!
They say I should be over it with 4 days of IVIg, and it should not return or become chronic afterwards. If I would get ITP again, they can treat it just the same way, even during pregnancy... not that I would take that decision lightly, I have had my wake-up call now and really don't wan't to die...
However, I am thinking about the miscarriage 3 months ago and potential immune problems... very interesting now, considering one of the treatments for immune-related fertility problems (cfr Dr Beer) is IVIg, the same treatment as I'm getting now for my ITP!
2/2007: First (and only) MS-exacerbation, started with Rebif
3/2008: First round of Campath (high dose; off-label)
5/2009-1/2010: Pregnancy (we had some little troubles to conceive), delivered a perfectly healthy baby
3/2010: Second round of Campath (high dose; off-label)
7/2010: Early miscarriage (surprise pregnancy); no chromosomal abnormalities found (had a D&C)
10/2010: ITP
I went to work fine, came home at night still feeling perfectly fine only to discover my legs were covered in bruises and I had gingival bleeds... I knew what it meant so straight to the ER, my platelets were only at 7k, they started steroids but the following morning I had only 3k. Now getting IVIg treatment.
And still feeling fine!!
They say I should be over it with 4 days of IVIg, and it should not return or become chronic afterwards. If I would get ITP again, they can treat it just the same way, even during pregnancy... not that I would take that decision lightly, I have had my wake-up call now and really don't wan't to die...
However, I am thinking about the miscarriage 3 months ago and potential immune problems... very interesting now, considering one of the treatments for immune-related fertility problems (cfr Dr Beer) is IVIg, the same treatment as I'm getting now for my ITP!