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allergy

Posted: Thu Feb 26, 2009 9:38 am
by k6ristin
I was plagued with respiratory symptoms--9 months of a cold, sometimes it seemed like it was worse at night or worse in the morning, which sounded like an allergy. I re-did a blood elisa allergy test and it still says I'm not allergic to anything!!! The colds did stop @ month 9. I had a flare up month 10 ;( seems to have resolved but with lasting new symptoms of spasticity in my leg.
18 days til my second campath infusion!!! wish me luck!

Posted: Thu Feb 26, 2009 10:04 am
by patientx
Thanks.


Break a leg....

Campath Study

Posted: Thu Jun 04, 2009 5:53 pm
by queenie
Mike: I am about 1 1/2 months out of my first year campath infusions(the 5 in a row). I knew I would drop out if I was randomized to rebif, and was then going to try tysabri. I felt very lucky and privileged to have been randomized to campath.
I have similar symptoms to yours. Don't know yet if it will do me any good, but I tolerated the treatment amazingly well, and am ready for the long haul!
Can you get tysabri, and have you considered it? It seems to be a good option.
Otherwise, if you can afford to go off-label, and can get it, I don't know if it will do any good, but don't be scared. I am an RN, and have to say, it was a peice of cake for me! :)