Page 3 of 3

Posted: Wed Sep 23, 2009 5:35 am
by patientx
Tiffany wrote: Can't really comment on Campath as my views are very biased but hope your keeping well.

Jules (Robins other half)
Biased in a good way, I assume?

Posted: Wed Sep 23, 2009 5:36 am
by raven
Actually Alemtuzumab is the technical name, Campath is the brand name which derives from the originators of the drug Cambridge Pathology. Nothing more sinister than that. (Despite the protestations of my darling wife...)

Robin

Posted: Wed Sep 23, 2009 5:52 am
by Tiffany
Patientx wrote
Biased in a good way, I assume?
Yes very much so :)


Raven wrote
(Despite the protestations of my darling wife...)
:oops: :lol:

Jules

Posted: Wed Sep 23, 2009 12:35 pm
by Lyon
.

Posted: Sun Sep 27, 2009 7:01 pm
by queenie
I am sooo happy to hear from someone 3+_years in!!!
I am at 5 months, but feel better than I have in 20 years!
I wonder what happens after the year 2 infusions.
If they offer them yearly, I AM IN!!!
This is the best news I have had in some time!
Please respond, as I need incouragement. I have found that this site is not very active, so far as on-going talk and incouragement.

Posted: Thu Oct 01, 2009 9:52 am
by raven
Hi Queenie

I'm glad you feel well after the treatment. As far as re-treatment goes I believe after the second infusion they will respond based upon need. If you show no signs of disease activity there is no need to retreat with what is let's face it, a pretty serious drug.

I gues us old timers don't visit that often because we have made our decision and are busily getting on with life. MS to me is a minor irritant that will not go away but also shows no sign of getting worse.

I am glad that I made the decision that I did and really hope that you and any others who decide to try Campath get the results that I have had.

Best wishes
Robin

Posted: Wed Oct 07, 2009 6:54 pm
by queenie
Yes, they check wbc counts monthly, as well as a slew of other things. My wbc has slowly been climbing, finally breaking 3 at 5 months.