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Cece wrote:Egggirl, please keep us posted, this is fascinating and I have an open mind too, there is enough theoretical and scientific evidence to support this as an area of inquiry in inflammatory diseases.

LIkewise

I am starting hook & whipworm therapy next week. Evenone I have spoken to in medical / research type fields says go for it;

This includes my cousin who is doing his Phd in medical biochemistry;
A friend who is doing a Phd in Biology
Another friend who is a radiologist and sees lots of MS cases
My dads cousin who is a retired pharmacologist.
Even my GP is cautiously supportive!

Any updates Egg Girl?

Sorry I have not posted sooner! Hoping everyone is doing well!

I have taken my treatment every 2 weeks since January 3rd. NO side effects.

Sensation on and off on my face and teeth. I keep thinking am I really feeling.Yes I am.

The most marked improvement I have has been my fatigue. I was sleeping up to 3 hours in the the middle of the afternoon. Now I have gone days without even a catnap.

I do notice the tingling in my face right before I take my treatment. I am wondering if with the TSO a half dose every week would not be better? I am going to keep track of this in more detail and give the info to the study investigator. Maybe useful, may not.

..

Thanks for the update, egggirl!

Are there any theories for why this would help with fatigue? If the immune system is diverted to dealing with the parasites, does that reduce inflammation in the brain?

I am intrigued by this theory partly because it is squeamish-making, which would be a reason why scientists have ignored it as a possibility. And as squeamish-making as this is, MS is a whole lot worse.

Bump

C'mon Egggirl lets have an update!

Cheers

MB

Hi Everyone! Sorry I have not kept you posted on my progress. So far I have had some slight new tingling. I have to sit very still to notice it.

I feel really great and have to say that if they ever get the second phase of this trial completed I will sign up for the third.

I am also excited to say I may be participating in a news interview on TV regarding the TSO treatment. I will let you know what I find out. My hope is by agreeing to go on TV it may open up other MSers in my area to at least learn about the study and what is involved.

All I can say for me is so far, so good!!! I will not wait so long to post again.

At this point I am taking the treatment once every two weeks through September.

Egggirl wrote:Hi Everyone! Sorry I have not kept you posted on my progress. So far I have had some slight new tingling. I have to sit very still to notice it.

I feel really great and have to say that if they ever get the second phase of this trial completed I will sign up for the third.

I am also excited to say I may be participating in a news interview on TV regarding the TSO treatment. I will let you know what I find out. My hope is by agreeing to go on TV it may open up other MSers in my area to at least learn about the study and what is involved.

All I can say for me is so far, so good!!! I will not wait so long to post again.

At this point I am taking the treatment once every two weeks through September.

Thanks Egggirl.

Can you update us please as regards your progress especially as we are now at the end of September.

So I sure did not get on here keep anyone posted with how I was doing! I am feeling good.

I finished the pig whip worm in October. NO treatment after that. I had an MRI the end of Jan. as part of the study I was in. The study was blinded but they got permission to give me the results of the last MRI to help me decide if I wanted to start the shots or not.

NO active lesions! How about that!

Fantastic news! I must say I feel that this therapy could really help with the aberrant immune response and perhaps combined with CCSVI could really change one's quality of life.

Oh wow! This is finally happening. Lyon must be overjoyed Hope al goes well. Look forward to you reading your posts.

well hello, stranger

I know. It has been a long time JL

I've gotta say - I've been fascinated by this study. Looks like a great result for you Egggirl. So you don't need to keep taking eggs? Or do you only take eggs again under certain situations (like after antibiotic therapy???) - or do you not get access to eggs anymore as the trial is over?

hwebb wrote:I've gotta say - I've been fascinated by this study. Looks like a great result for you Egggirl. So you don't need to keep taking eggs? Or do you only take eggs again under certain situations (like after antibiotic therapy???) - or do you not get access to eggs anymore as the trial is over?

x10
Absolutely dumbfounded, awestruck, in big shock, totally mesmerised. This nearly the strangest thing I have ever heard.
Yet somehow,
Fits perfectly with my, get down and eart dirt "Hunter Gatherer" philosophy.

Wanna hear more of your progress and read study outcomes when completed.