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Anyone on Gilinia (fingolmod) yet

Posted: Sat Jan 29, 2011 9:18 pm
by lmacalus
Kso my spelling is terrible - is there anyone here who has started on this new oral med from Novartis yet?
I'm scheduled for my first dose Tuesday am and was wondering outside of the 6 hour observation in a cardiologist's office what should I expect!

Re: Anyone on Gilinia (fingolmod) yet

Posted: Sat Jan 29, 2011 10:15 pm
by NHE
lmacalus wrote:Kso my spelling is terrible - is there anyone here who has started on this new oral med from Novartis yet?
I'm scheduled for my first dose Tuesday am and was wondering outside of the 6 hour observation in a cardiologist's office what should I expect!
We now have a forum specific to gilenya. http://www.thisisms.com/forum-43.html

You might also want to check there.

NHE

Posted: Sun Jan 30, 2011 8:56 am
by patientx
Imacalus:

You might want to check out the MSWorld forum:
http://www.msworld.org/forum/forumdisplay.php?f=93

It has a fairly active Gilenya forum.

Thank you!

Posted: Sun Jan 30, 2011 2:14 pm
by lmacalus
The FB support group is AWESOME!!!