This Is MS Multiple Sclerosis Knowledge & Support Community

Hello,

I was diagnosed with relapsing/remitting MS in April of 2014. I began Tecfidera mid May of that year. This last summer has been rough...numbness, I fell, etc. Had an MRI and found that I had new lesions on my thoracic and cervical spine. I met with a n MS Specialist and after much discussion, labs, etc it was decided that I would start Tysabri infusions.

My first infusion is set for Tuesday Nov 15th and needless to say I am nervous. I just met with my family practice Dr, who is very knowledgeable about MS. He had made the comment that I should make sure my family knows that I will not be in charge of Thanksgiving (this is without me even bringing up that we were potentially hosting), I shouldn't be the one in charge of schlepping a turkey around, making ten pounds of potatoes, etc. He said that I could potentially feel wiped out for a while.

I am nervous...nervous for what I am going to feel like after, the side effects, and all that accompany starting new meds. The Tecfidera made me extremely sick for a good 2 months.

If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!

Thank you,
Heather

hbriese07 wrote:Hello,

If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!

Thank you,
Heather

Hi Heather, and welcome!

I just noticed you had no replies to your question yet, even though there are many people taking Tysabri. I suspect it's because the subject heading isn't specific enough -- and also that it's in the "Drug Pipeline" forum. I know it's a bit tricky to figure out how the forum works at first, so I would suggest that you explore the Tysabri subforum here: http://www.thisisms.com/forum/tysabri-a ... zumab-f11/

If you don't find enough info already posted in those threads, you should ask your question again there, with a subject heading like, "Tysabri question" in order to get more responses. Good luck with your med decision and please feel free to ask as many questions as you want.